Swedish Neurofibromatosis Clinic

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Swedish Neurofibromatosis Clinic

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The Swedish Neurofibromatosis clinic is a multidisciplinary specialty and research center for adults and older teenagers with neurofibromatosis 1 and 2 and other genetic nervous system tumor syndromes.

Our services

NF1 clinical services

  • Genetics
  • Medical oncology
  • Neurology
  • Neuro-oncology
  • Neuro-ophthalmology
  • Neuropathology
  • Neuroradiology
  • Neurosurgery
  • Pediatric neurology
  • Peripheral nerve surgery
  • Plastic surgery
  • Orthopedic surgery
  • Radiation oncology
  • Research coordination
  • Social services

NF2 clinical services

  • Audiology
  • Genetics
  • Medical oncology
  • Neurology
  • Neuro-oncology
  • Neuro-ophthalmology
  • Neuropathology
  • Neuroradiology
  • Neurosurgery
  • Neurotology
  • Radiation oncology
  • Research coordination
  • Social services

Most of the patients we see are age 18 years and older, but some younger individuals are seen as well. We also see patients with other tumor genetic syndromes, including von Hippel-Lindau, tuberous sclerosis, Sturge-Weber, Turcot’s and Cowden’s.


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Our NF clinic has been accepted into the NF Clinic Network (NFCN) by the Children’s Tumor Foundation (CTF), which recognizes clinics that provide comprehensive medical care to individuals with NF; foster patient education; and encourage participation in research. Please see ctf.org for more information.