Swedish Neurofibromatosis Center

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Swedish Neurofibromatosis Center

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The Swedish Neurofibromatosis Center (SNC) is a multidisciplinary specialty and research center for adults and older teenagers with neurofibromatosis 1 and 2 and other genetic nervous system tumor syndromes.

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Our Services

NF1 clinical services

  • Genetics
  • Medical oncology
  • Neurology
  • Neuro-oncology
  • Neuro-ophthalmology
  • Neuropathology
  • Neuroradiology
  • Neurosurgery
  • Pediatric neurology
  • Peripheral nerve surgery
  • Plastic surgery
  • Orthopedic surgery
  • Radiation oncology
  • Research coordination
  • Social services

NF2 clinical services

  • Audiology
  • Genetics
  • Medical oncology
  • Neurology
  • Neuro-oncology
  • Neuro-ophthalmology
  • Neuropathology
  • Neuroradiology
  • Neurosurgery
  • Neurotology
  • Radiation oncology
  • Research coordination
  • Social services

Scheduling a Visit

SNC clinics are held on Tuesdays, although patients can be seen any day according to need. Initial and follow-up visits for most patients will be with Dr. John Henson, with additional specialty visits planned as needed.

Most of the patients in the SNC are age 18 years and older, but some younger individuals are seen as well. Patients with other tumor genetic syndromes, including von Hippel-Lindau, tuberous sclerosis, Sturge-Weber, Turcot’s and Cowden’s, are also seen in the SNC.