Patient Support and Resources

Welcome to our new Swedish Neuroscience Institute Epilepsy Center Resource Page! We have created this page in an effort to assist our patients and their family members in finding community resources that may help them maintain safety and improve/maintain quality of life. The following list of resources represents a small fraction of the organizations and online tools available to individuals seeking resources. Please use independent judgment and request references when considering the use of services from any professional. We do not endorse any of these resources and request that you contact these agencies directly for their program criteria as well as feedback regarding errors on their website.

While the resources listed below may provide national information, most of them may be specific towards Washington State/Pacific Northwest area.  Please contact the NATIONAL INFORMATION AND REFERRAL SERVICES: 211 for resources within your specific area.

Epilepsy and Seizure Specific Agencies

• Brain Injury Resource Center
• Epilepsy Foundation Northwest
• Epilepsy
• Cleveland Clinic information on Non-Epileptic Seizures (PDF)
• Seizure Tracker

Preparing for your Hospital Stay or Outpatient Visit

• Initial visit patient questionnaire (PDF)
• FAQs regarding VEEG monitoring (PDF)
• Preparation for VEEG Monitoring (PDF)
• Swedish Medical Group financial application (PDF) - Please contact the Financial Assistance Counselors for additional information at 206-386-2646
• Accessibility for patients with special needs 
• Adult meal hints and ideas (PDF)
• Adult Cherry Hill parking information
• Angel Bus 
• Angel Flight West provides free, non-emergency air travel for children and adults with serious medical conditions
• Billing questions?  Contact: 206-320-5300 or 877-406-0438 (toll free)
• DSHS Kinship Caregiver’s guides
• Medical records - Please contact Health Information Management 206-320-2626 or visit their website
• Non-emergent transportation resources (PDF)
• Patient Process for Alaska Medicaid Lodging 
  • Alaska DSHS
• Patient and Provider Process for Idaho Medicaid Transportation 
• Idaho DSHS
• Idaho Access2Care (PDF)
• Patient and Provider Process for Montana Medicaid Lodging
• DSHS Montana
• Pediatric meal hints and ideas - First Hill (PDF)
• Pediatric First Hill parking information
• SMG friends and family ROI (PDF)
• Swedish patient and visitor information

American Disabilities Act - Special Accommodations for Education and Employment

• Americans with Disabilities Act
• Bride Ministries for Disability Concerns
• Department of Social and Health Services Division of Developmental Disabilities
• Division of Vocational Rehabilitation 1-800-637-5627 or online – For individuals with a disability that would like to work but face substantial barriers to finding or keeping a job.
• Equal Employment Opportunity Commission
• Families and Advocates Partnership for Education (FAPE)
• Job Accommodation Network (JAN) 
• Seattle Neurological Vocational Services Center
• University of Washington’s DO IT Program -  DO-IT Center promotes the success of individuals with disabilities in postsecondary education and careers, using technology as an empowering tool.
• University of Washington Driving Rehabilitation Program
• Washington State Human Rights Commission

Basic Needs, Crisis and Emergency Resources 

Please visit the following internet websites for further information:

• Asian Counseling and Referral Service
• Bellevue Life Spring
• Catholic Community Services 
• Chinese Information and Service Center
• Crisis Clinic
• Crisis Clinic Emergency Services Brochures
• El Centro de la Raza
• Habitat for Humanity  
• Hopelink
• Poison Control 1-800-542-6319
• Salvation Army
• Senior information and assistance of Snohomish County
• Senior services for assistance with information and referral, transportation, COPES, and other King County resources for adults 60+
• St. Joseph's Baby Corner
• Washington State Crisis Lines (PDF)

Dental Medical and Mental Health

• AOA Foundation Vision Assistance Program
• Bed Alarms through BedSeizureAlarm.com
• Crisis Clinic: If you are in an emotional crisis and live in King County, you may contact the 24-Hour Crisis Line through Crisis Clinic at 206-461-3222 or toll-free at 1866-427-4747 or through the TDD Line 206-461-3219. This is an anonymous and confidential service to assist you in the specifics of your situation and work with you on an effective answer. They are not equipped to respond to crisis oriented e-mails so please contact them directly.
  
  If you are seeking information on health and human services, you may look at their community information page.
  
  If you are seeking assistance outside of King County, you may contact the 211 Community Information Line by dialing 2-1-1 or toll-free 1-800-621-4636 or TDD Line 206-461-3610.
• Crisis Solution Center through DESC
• Geriatric Regional Assessment Team
• Helmets for patients with epilepsy - Plument or Guardian helmets
• King County Crisis and Commitment Services for Mental Health
• King County Treatment for Co-Occuring Disorders 
• Low Cost or Sliding Scale Public Health Centers in Seattle and King County – Medical
• Low Cost or Sliding Scale Public Health Centers in Seattle and King County – Dental 
• Low Cost or Sliding Scale Public Health Centers in Seattle and King County – Mental health 
• SightLife for Sight and Hearing Impairment Services 
• UW Driving Rehabilitation Program
• Veterans Administration Medical Center 206-762-1010

Domestic Violence

• Washington State Domestic Violence Hotline: 800-562-6025 (voice/TTY)
• National Domestic Violence Hotline: 800-799-7233 (voice) or 800-787-3224 (TTY)

End-of-Life, Support Group, Grief and Loss

• ARCH National Respite Locator for respite care assistance
• Association of Wish Granting Organizations 
• Attorney General’s Office Dealing With Death 
• Cascade Memorial for low cost cremation and memorials
• Centering Corporation provides education and resources for the bereaved
• Childcare Aware Resources 
• Compassionate Friends 
• Department of Veterans Affairs Burial and Memorial Benefits
• Epilepsy Support Groups through Epilepsy Foundation Northwest 
• Family Services 
• Grief Share 
• GriefWorks
• Healing Center
• Hello Grief
• Hospice Foundation
• Make A Wish Foundation 
• Organizations Related to Donation and Transplantation 
• People's Memorial - for low cost burial and cremation
• Seattle Children's Journey Program 
• Sudden Unexpected Death in Epilepsy (SUDEP)
• Swedish Medical Center Grief Support
• TAPS (Tragedy Assistance Program for Survivors) -  a non-profit Veteran Service Organization)
• TEARS Foundation
• Twilight Wish Foundation grants wishes to 68+ seniors, poverty level and/or lives in a nursing home
• What to do when someone close to you dies

Insurance, Financial and Prescription Assistance Programs

• List of Common Epilepsy Prescription and Copay Assistance Programs (PDF)
• AOA Foundation Vision Assistance Program
• Community Health Access Program 
• Department of Labor 
• Department of Social and Health Services 
• Project Access Northwest 
• Social Security 
• Social Security Compassionate Allowances 
• Washington State Health Benefits Exchange 
• Washington State Health Insurance Pool 
• Washington State Health Plan Finder - Find out about the Medicaid Expansion Program and see what type of health care plans/financial assistance may be available to you 
• Washington State Office of the Insurance Commissioner Statewide Health Insurance Benefits Advisors (SHIBA) 

Legal Services, Guardianship, Long-Term Care Planning, Advanced Care Directives and Living Wills

• AARP
• Caring from a Distance 
• Department of Social and Health Services Aging and Disabilities Services Administration 
• Department of Licensing - WA State Forms
  
  • Disabled Placard (PDF)
  • Driver Evaluation Request (PDF)
  • License Surrender (PDF)
  • Physical Examination Request (PDF)
  • Reporting Unsafe Drivers 
  • Vision Examination (PDF)
• Epilepsy Foundation Driving Laws By State 
• Family Care Navigator 
• King County Guardianship Forms 
• Northwest Justice Project 
• Office of Inspector General for reporting unsafe pilots 
• Senior Services 
• Swedish Medical Center Durable Power of Attorney for Health Care, FAQs, Living Wills
• Washington State Bar Association 
• United States Attorney Legal Services Pro Bono Programs – Washington State 
• United States Immigration Support 

Pediatrics and Parents

• Adolescent Health Transition Project for parents and children wishing to plan transition from adolescent to adult care
• Child Care Aware of America 
• DSHS Kinship Care 
• DSHS Kinship Caregiver’s Guide (PDF)
• Epilepsy and My Child 
• Epilepsy Parent Support Group 
• Lotsa Helping Hands 
• Mamapedia for moms with Epilepsy
• Mature Minor Doctrine (PDF) - A summary of health care services that can be provided to minors without parental consent per Washingtonlawhelp.org
• P2PUSA 
• Parent Trust for Washington Children 
• Seattle Children's Home - a private, not-for-profit organization that responds to the mental health needs of children and their families throughout Seattle, King County and Washington State
• The Center for Children with Special Needs 
• The Arc of Washington Parent to Parent USA 
• Washington State Department of Early Learning 
• Washington State Department of Health Young Adults Transition Plan (PDF) 
• Washington State Father’s Network for fathers of patients who have Epilepsy

Reporting Abuse and Neglect

If you suspect abuse/neglect of a vulnerable adult or child, please call 1-866-363-4276 or visit online to find out more about ways to report your concerns.

Reporting Americans with Disabilities Act Grievance

If you feel that the City of Seattle has not fulfilled ADA requirements, please report it to the City's Customer Service Bureau at 684-CITY (2489) or view their website. To read more about the Americans with Disabilities Act Information, you may visit the Washington State Legislature website.

Reporting Educational Concerns

The Office of the Education Ombudsman (OEO) resolves complaints, disputes, and problems between families and elementary and secondary public schools in all areas that affect student learning. If you have a concern and would like to receive assistance, you may contact Toll-free number: 1-866-297-2597 and a phone interpreter is also available. You may also visit their website for further information.

Reporting Mental Health Concerns

If you or a family member receive services for mental health services through a publicly funded mental health system and have complaints/grievances/concerns, you may contact the Mental Health Ombudsman online or at the 24-Hour Confidential Message Service: 206-205-5329 or toll free: 1-800-790-8049.

Substance Abuse, Smoking Cessation and Gambling Addiction Programs 

• Become an Ex Smoker 
• Drug & Alcohol Consulting Services - 1-888-699-DACS
• King County 
• Smoke Free Washington 
• Veteran's Affairs Substance Use Disorder Program Locator 
• Washington State Department of Health Tobacco Quit Line 
• Washington Recovery Help Line 

Therapy Dogs

• Canine Assistants – (Georgia)
• Brigadoon Youth & Service Dog Programs – (Bellingham, WA)
• Prison Pet Partnership Program – (Gig Harbor, WA)
• Paws with a Cause – (Michigan)
• Delta Society – (Bellevue, WA)
• Summit Assistance Dogs – (Anacortes, WA)
• Joys of Living Assistance Dogs – (Keizer, OR)
• Dogs for the Deaf – (Central Point, OR)
• Assistance Dogs International – (California)
• International Association of Assistance Dog Partners – (Michigan)
• Psychiatric Service Dog Society – (Virginia)

Transportation Resources

• Air Care Alliance 
• ACCESS Transportation 
• Angel Bus 
• Angel Flight West provides free, non-emergency air travel for children and adults with serious medical conditions  
• Dial A Ride Transporation 
• Epilepsy Foundation J. Kiffin Penry Patient Travel Assistance Program 
• Hopelink Transportation
• National Patient Travel Center 
• Paratransit Services 
• People for People 
• Senior Services 
• UW Driving Rehabilitation Program 

If you have any further resource questions or concerns, you may contact the Epilepsy Center Program Line at 206-320-3492. The links directly take you to the agency/resource; if you experience any problems with the links please contact the agency/resource directly. We have created this page in an effort to assist our patients and their family members in finding community resources that may help them maintain safety and improve/maintain quality of life. The list of resources represents a small fraction of the organizations and online tools available to individuals seeking resources. Please use independent judgment and request references when considering the use of services from any professional. We do not endorse any of these resources and request that you contact these agencies directly for their program criteria as well as feedback regarding errors on their websites.

Created: November 20, 2012

Updated: June 16, 2016