Patient Support and Resources

Welcome to our new Swedish Neuroscience Institute Epilepsy Center Resource Page! We have created this page in an effort to assist our patients and their family members in finding community resources that may help them maintain safety and improve/maintain quality of life. The following list of resources represents a small fraction of the organizations and online tools available to individuals seeking resources. Please use independent judgment and request references when considering the use of services from any professional. We do not endorse any of these resources and request that you contact these agencies directly for their program criteria as well as feedback regarding errors on their website.

While the resources listed below may provide national information, most of them may be specific towards Washington State/Pacific Northwest area. Please contact the NATIONAL INFORMATION AND REFERRAL SERVICES: 211 for resources within your specific area.

Epilepsy and Seizure Specific Agencies

Preparing for your Hospital Stay or Outpatient Visit

Initial visit patient questionnaire (PDF)
FAQs regarding VEEG monitoring (PDF)
Preparation for VEEG Monitoring (PDF)
Swedish Medical Group financial application (PDF) - Please contact the Financial Assistance Counselors for additional information at 206-386-2646
Accessibility for patients with special needs
Adult meal hints and ideas (PDF)
Adult Cherry Hill parking information
Angel Flight West provides free, non-emergency air travel for children and adults with serious medical conditions
Billing questions? Contact: 206-320-5300 or 877-406-0438 (toll free)
DSHS Kinship Caregiver’s guides
Medical records - Please contact Health Information Management 206-320-2626 or visit their website
Non-emergent transportation resources (PDF)
Patient Process for Alaska Medicaid Lodging
- Alaska DSHS
Patient and Provider Process for Idaho Medicaid Transportation

Idaho DSHS
Idaho Access2Care (PDF)

Patient and Provider Process for Montana Medicaid Lodging

DSHS Montana

Pediatric meal hints and ideas - First Hill (PDF)
Pediatric First Hill parking information
SMG friends and family ROI (PDF)
Swedish patient and visitor information

American Disabilities Act - Special Accommodations for Education and Employment

Americans with Disabilities Act
Bride Ministries for Disability Concerns
Department of Social and Health Services Division of Developmental Disabilities
Division of Vocational Rehabilitation 1-800-637-5627 or online – For individuals with a disability that would like to work but face substantial barriers to finding or keeping a job.
Equal Employment Opportunity Commission
Families and Advocates Partnership for Education (FAPE)
Job Accommodation Network (JAN)
Seattle Neurological Vocational Services Center
University of Washington’s DO IT Program - DO-IT Center promotes the success of individuals with disabilities in postsecondary education and careers, using technology as an empowering tool.
University of Washington Driving Rehabilitation Program
Washington State Human Rights Commission

Basic Needs, Crisis and Emergency Resources

Please visit the following internet websites for further information:

Asian Counseling and Referral Service
Bellevue Life Spring
Catholic Community Services
Chinese Information and Service Center
Crisis Clinic
Crisis Clinic Emergency Services Brochures
El Centro de la Raza
Habitat for Humanity
Hopelink
Poison Control 1-800-542-6319
Salvation Army
Senior information and assistance of Snohomish County
Senior services for assistance with information and referral, transportation, COPES, and other King County resources for adults 60+
St. Joseph's Baby Corner
Washington State Crisis Lines (PDF)

Dental Medical and Mental Health

AOA Foundation Vision Assistance Program
Bed Alarms through BedSeizureAlarm.com
Crisis Clinic: If you are in an emotional crisis and live in King County, you may contact the 24-Hour Crisis Line through Crisis Clinic at 206-461-3222 or toll-free at 1866-427-4747 or through the TDD Line 206-461-3219. This is an anonymous and confidential service to assist you in the specifics of your situation and work with you on an effective answer. They are not equipped to respond to crisis oriented e-mails so please contact them directly.

If you are seeking information on health and human services, you may look at their community information page.

If you are seeking assistance outside of King County, you may contact the 211 Community Information Line by dialing 2-1-1 or toll-free 1-800-621-4636 or TDD Line 206-461-3610.
Geriatric Regional Assessment Team
Helmets for patients with epilepsy - Plument or Guardian helmets
Low Cost or Sliding Scale Public Health Centers in Seattle and King County – Medical
Low Cost or Sliding Scale Public Health Centers in Seattle and King County – Dental
SightLife for Sight and Hearing Impairment Services
UW Driving Rehabilitation Program
Veterans Administration Medical Center 206-762-1010

Domestic Violence

Washington State Domestic Violence Hotline: 800-562-6025 (voice/TTY)
National Domestic Violence Hotline: 800-799-7233 (voice) or 800-787-3224 (TTY)

End-of-Life, Support Group, Grief and Loss

ARCH National Respite Locator for respite care assistance
Association of Wish Granting Organizations
Attorney General’s Office Dealing With Death
Cascade Memorial for low cost cremation and memorials
Centering Corporation provides education and resources for the bereaved
Childcare Aware Resources
Compassionate Friends
Department of Veterans Affairs Burial and Memorial Benefits
Epilepsy Support Groups through Epilepsy Foundation Northwest
Family Services
Grief Share
GriefWorks
Healing Center
Hello Grief
Hospice Foundation
Make A Wish Foundation
Organizations Related to Donation and Transplantation
People's Memorial - for low cost burial and cremation
Sudden Unexpected Death in Epilepsy (SUDEP)
Swedish Medical Center Grief Support
TAPS (Tragedy Assistance Program for Survivors) - a non-profit Veteran Service Organization)
TEARS Foundation
Twilight Wish Foundation grants wishes to 68+ seniors, poverty level and/or lives in a nursing home

Insurance, Financial and Prescription Assistance Programs

List of Common Epilepsy Prescription and Copay Assistance Programs (PDF)
AOA Foundation Vision Assistance Program
Community Health Access Program
Department of Labor
Department of Social and Health Services
Social Security
Social Security Compassionate Allowances
Washington State Health Benefits Exchange
Washington State Health Insurance Pool
Washington State Health Plan Finder - Find out about the Medicaid Expansion Program and see what type of health care plans/financial assistance may be available to you

Legal Services, Guardianship, Long-Term Care Planning, Advanced Care Directives and Living Wills

Pediatrics and Parents

Adolescent Health Transition Project for parents and children wishing to plan transition from adolescent to adult care
Child Care Aware of America
DSHS Kinship Care
DSHS Kinship Caregiver’s Guide (PDF)
Epilepsy and My Child
Lotsa Helping Hands
Mamapedia for moms with Epilepsy
Mature Minor Doctrine (PDF) - A summary of health care services that can be provided to minors without parental consent per Washingtonlawhelp.org
P2PUSA
Parent Trust for Washington Children
Seattle Children's Home - a private, not-for-profit organization that responds to the mental health needs of children and their families throughout Seattle, King County and Washington State
The Center for Children with Special Needs
The Arc of Washington Parent to Parent USA
Washington State Department of Early Learning
Washington State Department of Health Young Adults Transition Plan (PDF)
Washington State Father’s Network for fathers of patients who have Epilepsy

Reporting Abuse and Neglect

If you suspect abuse/neglect of a vulnerable adult or child, please call 1-866-363-4276 or visit online to find out more about ways to report your concerns.

Reporting Americans with Disabilities Act Grievance

If you feel that the City of Seattle has not fulfilled ADA requirements, please report it to the City's Customer Service Bureau at 684-CITY (2489) or view their website. To read more about the Americans with Disabilities Act Information, you may visit the Washington State Legislature website.

Reporting Educational Concerns

The Office of the Education Ombudsman (OEO) resolves complaints, disputes, and problems between families and elementary and secondary public schools in all areas that affect student learning. If you have a concern and would like to receive assistance, you may contact Toll-free number: 1-866-297-2597 and a phone interpreter is also available. You may also visit their website for further information.

Reporting Mental Health Concerns

If you or a family member receive services for mental health services through a publicly funded mental health system and have complaints/grievances/concerns, you may contact the 24-Hour Confidential Message Service: 206-205-5329 or toll free: 1-800-790-8049.

Substance Abuse, Smoking Cessation and Gambling Addiction Programs

Therapy Dogs

Transportation Resources

If you have any further resource questions or concerns, you may contact the Epilepsy Center Program Line at 206-320-3492. The links directly take you to the agency/resource; if you experience any problems with the links please contact the agency/resource directly. We have created this page in an effort to assist our patients and their family members in finding community resources that may help them maintain safety and improve/maintain quality of life. The list of resources represents a small fraction of the organizations and online tools available to individuals seeking resources. Please use independent judgment and request references when considering the use of services from any professional. We do not endorse any of these resources and request that you contact these agencies directly for their program criteria as well as feedback regarding errors on their websites.

Created: November 20, 2012

Updated: June 16, 2016