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"Life goes on" despite multiple sclerosis

September 03, 2015
Ed. Note: This blog post was written by Ed Johnson about his experiences before and after being diagnosed with MS.

I miss coaching college and high school volleyball. I was a college volleyball coach for 15 years with various schools. Perhaps the high point was when our Missouri Valley College men’s team was ranked number two in the entire nation. We were so good that year that many bigger-name schools refused to play against us, fearing embarrassment if our smaller school won. That was before M.S.

Bladder drips and gullywashers improve after anti-incontinence surgery

September 02, 2015
When a woman has bothersome bladder leakage and is seeking to get her bladder back under her control, the first thing her provider will diagnose is whether the leakage is stress-type incontinence ("drips" small amount of urine with cough, sneeze, exercise), or urge-type incontinence (loses large volume of urine, "gullywashers" soaking pads and clothing). Stress-type drip patterns are more common, but urge incontinence can put a huge dent in your quality of life and can be terribly bothersome. Urge incontinence is also called overactive bladder, and may involve a spectrum of symptoms with urinary frequency, urgency, and leakage. Many women have a combination of symptoms and both types of leakage patterns, i.e. mixed-incontinence, and this situation can pose a dilemma to providers since the treatments for stress or urge incontinence are different - which to treat first?

Mental health apps: help when you need it

August 28, 2015
Millions of Americans suffer from some form of mental health problems. It is estimated that in the U.S., about 40 million adults suffer from anxiety, about 20 million adults suffer from depression, and another 8 million suffer from PTSD. Many more people, about 78 million, report suffering from high levels of stress with poor health in self or a family member being the primary reason for the stress. Unfortunately research consistently shows that two-thirds of these people do not seek out treatment for their problems. And those who are interested in help often run into barriers that prevent them from receiving treatment. Barriers can include lack of or inadequate health insurance, lack of mental health resources in rural or impoverished areas or the stigma of getting help for mental health problems. 

Apps on smart phones could help address some of these barriers. There are hundreds of apps focused on helping people with anxiety, depression, PTSD, stress and other symptoms.  


Updated diagnostic criteria for neuromyelitis optica spectrum disorders (NMOSD)

August 27, 2015
Neuromyelitis optica (NMO) is a neuroinflammatory disorder characterized by optic neuritis and extensive myelitis. Like multiple sclerosis (MS), it can have a relapsing remitting disease course. Some of the NMO patients tend to run a more aggressive disease course. Most patients with NMO have Ig G antibodies to the aquaporin-4 water channel (AQP4).

In July 2015, experts from International Panel for NMO Diagnosis (Wingerchuk DM et al. Neurology 2015 Jul 14) provided updated consensus recommendations for NMO spectrum disorders (NMOSD). 

Update on the proposed changes to food labels by the FDA

August 24, 2015
In a previous blog post, I mentioned that the U.S. Food and Drug Administration (FDA) is making changes to nutrition facts labels (originally introduced 20 years ago to help consumers make informed and healthy food choices).

On July 27, 2015, the FDA added a supplement to the initially proposed changes (originally published March 2015). It proposes that food manufacturers not only list the grams of added sugar, but also declare the percent daily value (%DV) for added sugars, which is a major step forward in aligning with international standards for sugar intake, and a totally novel concept in terms of food labelling in the U.S.

Ductal carcinoma in situ - the need for individualized treatment planning

August 21, 2015
On August 20, 2015, the New York Times published an article with the provocative title, “Doubt is Raised Over Value of Surgery for Breast Lesion at Earliest Stage.” In it they reference a study by Narod reported in JAMA Oncology that looked at breast cancer death after a DCIS diagnosis. 

But, the questions addressed by the article were different than the questions generated by the research.

Bike the US for MS donates $25,000 to Swedish MS Center

August 20, 2015
For the fourth year in a row, the committed riders of Bike the US for MS arrived at the Peddler Brewing Co. in Ballard this month to present a $25,000 gift to the Swedish MS Center in honor of its excellence in MS care.

Eating organic may help prevent UTIs

August 18, 2015
Urinary tract infections (UTIs) are very common and becoming harder to treat due to antibiotic resistant bacteria. Where are these resistant bacteria coming from? Overuse of oral antibiotics for any suspected infection has historically been thought to be a culprit, but now there's increasing evidence that resistant bacteria are coming from the global food chain, and in particular the poultry industry. Antibiotics are commonly used in poultry feed on chicken farms to reduce the risk of E.coli infections. Drug-resistant E.coli UTIs are increasing in women who are otherwise healthy and living in the community and have no other risk factors for developing drug-resistant infections. There is increasing evidence that drug-resistant E.coli from antibiotic-treated chicken meat, then ingested by women, may contribute to the emergence of drug-resistant community-acquired UTIs.

Switching from Tysabri to another MS medication

August 18, 2015
There has been debate about how to switch patients with multiple sclerosis (MS) from Tysabri to other medications. This happens most often when patients on Tysabri become positive for antibodies to the JC virus. Patients that have these antibodies are at increased risk of a serious infection called progressive multifocal leukoencephalopathy (PML).

New research has studied varying timelines for starting a new medication after Tysabri.

How to help kids prepare for surgery

August 17, 2015
Being scheduled for a surgical or sedated procedure can be a nerve wracking experience for children and their families. Knowing what to expect when you visit the hospital can help relieve many common fears and concerns. At Swedish, Child Life Specialists help children and families cope with the hospital process. Child Life Specialists are available to help educate and prepare children and families prior to surgery.

The pre-operative tour is a great place to start.
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