Regardless of what service your child will be receiving at the hospital, there are ways in which you can better prepare them and yourself for what to expect during your stay.
At Swedish, Child Life Specialists help children and families cope with the hospital process. Child Life Specialists are available to help educate and prepare children and families prior to surgery and/or an inpatient stay. Some tips on how to prepare your child for an inpatient stay include .....
With her back turned, the little girl doesn’t notice a young man entering the room. He is holding a tool, one of which the full power and potential is still unknown to most. Even though he has witnessed its abilities before, what happens next still takes even him by surprise.
Not knowing what to say, he says nothing at all. He lifts his instrument and strikes the first chord. The girl stops. He continues to play. The girl turns and slides to the floor. The young man sinks to his knees, the same level as the girl. Strumming his ukulele the young man begins to sing. The little girl begins to scoot herself across the floor, 20 feet to where the young man kneels, closer and closer until her knees touch his.
There are gasps coming from the doorway, as a handful of hospital staff and nurses witness to an amazing transformation. In a flip of a switch, the little girl went from utter anxiety to calm and happy, soothed by the sound of music. As the young man finishes his song, the little girl smiles, reaches out her hand to touch his, then falls back, smiling and laughing.
This is the story of Melodic Caring Project Founder, Levi Ware, on his most recent visit to provide live music to pediatric patients at Swedish First Hill.
“I've been playing music for a long time and I've seen a lot of amazing things happen when music is introduced into certain situations. What happened on the Pediatric Unit at Swedish was one of the most wonderful, beautiful and undeniably powerful music experiences I've had. ...
It is with great happiness that I update an earlier blog posted several months ago with the news that patients with food allergies now have a law that helps them afford their treatment. On Friday March 28th, Governor Jay Inslee signed a law that makes Washington the most recent state in the country to set a mandate for medical coverage of elemental formulas in the treatment of Eosinophilic GI disorders (EGIDs). EGIDs are a severe form of gastrointestinal inflammation that results from food allergy.
As we head into the final months before the law’s final compliance date, I thought I’d highlight a few other key points about this brand new law:
1. No symbols needed. The law does not require or recommend manufacturers use any particular symbol or food label, but if a label should include any of the following phrases, compliance must be ensured:
• “Free of gluten”
• “No gluten”
• “Without gluten”
2. It’s voluntary. A manufacturer may produce gluten-free foods, but just choose not to label them as such.
3. “Gluten-free” does not mean “zero gluten”. The new law defines "gluten-free" to mean that a food contains less than 20 parts per million (20 ppm) of gluten. (This tiny amount can be visualized as less than a tenth of a grain of salt on a slice of bread, and is acceptable as the standard for people with celiac disease).
4. As with any rule, there are exceptions. Although ...
A 4 week-old infant and his mother came to my office last week. The mother had started seeing small flecks of blood and stringy mucous in the infant’s diapers a week prior. The baby was fine in every other way, breast feeding normally, and looked quite healthy when I examined him.
I diagnosed the infant as having cow’s milk protein-induced proctocolitis, the term referring to allergic inflammation of the lower gastrointestinal tract from exposure to cow’s milk.
This is a diagnosis I make often. Here's what you should know about infants with milk allergies:
- It’s more common than you think. 2-3% of infants in the U.S. are allergic to cow’s milk protein. It is even more common in infants with eczema or who have parents or siblings with allergies.
- It’s seen in breast fed babies. Over 50% of infants with this condition are breast milk-fed infants. But remember, the babies are allergic to the dairy in their moms’ diets, not to their mothers’ breast milk per se!
- Switching to soy or goat’s milk doesn’t work. Over two-thirds of infants with cow’s milk protein allergy “cross-react” to soy protein (which means that they may not be truly allergic to soy protein, but their immune systems are just too “immature” to know the difference between the two). Similarly, if a mother switches from drinking cow’s milk to goat’s milk, it won’t help, because the source is still a “different species”; the infant’s immune system will still respond to the “foreign” protein.
- Treatment takes time. The inflammation resolves when all traces of cow’s milk (and soy), are removed from the infant’s diet. In the case of formula-fed infants, we switch to special hypoallergenic formulas. Typically after a successful switch, the bleeding stops within a week. However, with breast fed infants, the improvement can be a little slower. Since it can take up to 2 weeks for the dairy in a mother’s diet to circulate into her breast milk, the full effects may not been seen for up to a couple weeks.
- Allergy testing is not recommended. The type of allergy that ...
In the fall of 2011, Swedish opened the largest, most advanced endoscopy center in the Pacific Northwest. This state-of-the-art unit serves as the procedural space for a broad range of minimally invasive cases performed by gastroenterologists, colorectal specialists, thoracic and bariatric surgeons and pulmonologists on patients with a broad range of digestive and respiratory diseases. As we celebrated this accomplishment, we were reminded of the complexity of digestive disease and that many times, patients and possibly even referring physicians aren’t sure of what type of specialist is best suited to a particular digestive problem.
There is nothing more distressing as a health care professional than hearing patient horror stories about trying to access care. A chronic illness can cause depression and discouragement; an acute illness or a cancer diagnosis can overwhelm the patient and the patient’s family with plenty of unknowns.
To address these challenges, a group of 50+ specialists came together and created the Swedish Digestive Health Network.
The Swedish Digestive Health Network focuses on collaboration to ease the way for ...
Working as a CMA (certified medical assistant) in Swedish Pediatric Gastroenterology, I have the responsibility and honor of taking care of children diagnosed with a variety of gastrointestinal problems, one of the most serious being Inflammatory Bowel Disease (IBD). IBD is an autoimmune disease that causes chronic intestinal inflammation. Crohn’s disease and Ulcerative Colitis are the two main types of IBD, depending on the location and depth of inflammation in the gut.
As I work with the families of children diagnosed with IBD, I am constantly amazed at what a complicated job they have, balancing life between a chronic illness and the challenges of “normal childhood”.
As the school year gets off to a start, seeing how hectic life can become for most kids, I wanted to write down a few ways children with IBD might better empower themselves to gain control over their chronic disease:
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