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June 18, 2015
Over the years, the World Health Organization’s discussion around disability has changed from “impairment, disability, and handicap” to “impairment, activity, and participation.” In other words, the focus has shifted to that of function through activity and participation. This shift in perspective is important but not sufficient.
June 06, 2015
Undoubtedly the most talked-about study presented at the annual meeting of the American Academy of Neurology in Washington, DC, was the study of high-dose biotin for progressive MS (PPMS or SPMS). The authors conducted a randomized, double-blinded, placebo-controlled study across 16 MS centers in France, comparing placebo with MD1003, a proprietary purified high dose biotin. 154 patients participated in this 12-month study. The primary endpoint of the study was the proportion of patients who improved at 9 months (compared to the entry at the study), with sustained improvement at 12 months. 12.6% of patients in the MD1003 arm improved, compared to 0% in the placebo arm. The treated group, as a whole, had improved disability scores compared to placebo group. MD1003 was well-tolerated.
June 04, 2015
Listen to this podcast about how music therapy can help stimulate alternative pathways in the brain as well as help facilitate control of movement. The MS Center at Swedish offers group Music Therapy sessions with a licensed musical therapist.
May 26, 2015
Biotin is vitamin B7. There is a group in France studying Biotin. They published a small study a few months ago, and a larger study was presented at the AAN meeting last month. The results of the study were reported to show a benefit in patients with primary or secondary progressive MS. There were 154 patient enrolled in this study, half on biotin and half on placebo. The outcome measured was the number of people who improved on their disability at 9 months and who continued to be improved at 12 months.
May 22, 2015
Many multiple sclerosis (MS) patients take supplements for their health. The natural substances that have the most evidence based medicine for health in MS are ensuring adequate levels of Vitamin D, B-12, Omega 3 fatty acids, and Calcium.
May 20, 2015
A patient of mine said that if he did not tell his children about his MS, he would have missed 10 years of their support.
The article, Informing the Children When a Parent Is Diagnosed as Having Multiple Sclerosis, mentions chronic neurological disease in one person affects the entire family and has a significant impact on the lives of children. Typically, when a person is diagnosed with MS, information from the health care provider is disseminated to the "ill" person, who then informs the rest of the family. However, children in the family are seldom the primary recipients of information delivered by health care professionals. Unfortunately, it has been reported that children without "thorough" information about their parents' MS have lower emotional well being than those who are better educated.
May 15, 2015
12 year old Luke Merritt deals with MS everyday but refuses to let the disease steal his childhood.
May 11, 2015
Thank you to all who walked in the National Multiple Sclerosis Society Walk MS event to raise awareness about MS and help fund a cure. With over 170 team members, and over $15,000 raised, the Swedish MS Center, Neuro-ophthalmic Consultants of NW, and Seattle Radiologists team well exceeded the fundraising goal of $10,000. To kick off the event, the “Swedish Smyelin Babes” running team lead by Neurologist, Lily Jung Henson, ran the inaugural 5K race at 8 a.m. Around 10 a.m., the Swedish MS Walk Team along with nearly 5,000 individuals walked along the Burke Gilman Trail in support of MS, family members, friends and colleagues.
May 08, 2015
Musician David Osmond, from the famous musical Osmond family, visited the Swedish Multiple Sclerosis (MS) Center, touring the clinic with medical director, James Bowen. Having been diagnosed with relapsing-remitting MS in 2005, Osmond was interested in learning more about comprehensive care for MS.
April 23, 2015
Experts from the Multiple Sclerosis Center at Swedish Neuroscience Institute and the National Multiple Sclerosis Society are bringing this...