Swedish Multiple Sclerosis Blog

Swedish Multiple Sclerosis Blog

Gilenya fails in primary progressive multiple sclerosis trial

Pavle Repovic, MD, PhD
We recently found out that Gilenya (fingolimod), an oral treatment for relapsing multiple sclerosis (MS), did not slow down disability progression in a phase III trial among primary progressive MS (PPMS) patients. The trial, called INFORMS, was the largest to date in PPMS, involving 970 patients in North America, Europe, and Australia. Patients were assigned to placebo or Gilenya for 3 years, and the primary outcome was a composite of walking, arm function and overall disability measures. Unfortunately, the progression rates in Gilenya and placebo groups were not statistically different. A full report of the trial will be presented at one of the upcoming neurology meetings, possibly in April 2015.

What type of MS do I have?

James D. Bowen, MD

Traditionally, MS has been divided into four clinical courses: relapsing/remitting, primary progressive, secondary progressive and progressive relapsing. These four were intended as descriptions of the different courses that MS could take in patients, and were not based on any particular understanding of the biology of the disease, the cause of the disease, or even the prognosis of patients with the different types of MS. Over the years, our understanding of MS has improved, and these descriptions of the disease course no longer meet our needs to describe the disease.

Over the past couple of years, there has been a revision of our classification of MS, resulting in a publication in July 2014. The recommendations of this revision have been  ..

Video: Music, Movement and Meditation Class at the Multiple Sclerosis Center

Mallory Higgins

Mallory Higgins
Education Coordinator and Marketing Specialist, Swedish MS Center


Click on the link below to watch footage of the Multiple Sclerosis Center’s Music, Movement and Meditation class with instructor, Gayle Cloud. This upbeat class is a blend of music and song combined with lighthearted activities. Bring your dancing shoes or wheels—Gayle will have you doing gentle movements to the beat. Music is offered to all patients with MS, Parkinson’s, stroke, or similar disease. Family members, caregivers, and friends are welcome to attend as well. No music experience required; wheelchairs are welcome.

The American Music Therapy Association (AMTA) published research that shows how music can help:

December Pet of the Month

Mallory Higgins

Mallory Higgins
Education Coordinator and Marketing Specialist, Swedish MS Center

Pup: Katie
Age: 14
Owner: Carlo
Breed: Australian Cattle Dog
Favorite toy: Hedgehog Baby
Unique fact: Katie has three legs

What makes your pet special?

I am her focus.  She is my shadow.  We have been together for over 10 years.  We went across country on an antique wheelchair trying to raise money and awareness for MS.  We started the nonprofit, "The Spirit of Hope Foundation."  The U.S. government asked Katie and I to attend one of their events in Washington D.C.  It was a  ...

Seasonal Celebration at the Multiple Sclerosis Center

Mallory Higgins

Mallory Higgins
Education Coordinator and Marketing Specialist, Swedish MS Center

Join us!

The Swedish Multiple Sclerosis (MS) Center is hosting a gathering to celebrate the holidays and show our appreciation for the MS Community. Join us for refreshments, appetizers, music, activities, and a raffle of prizes. This is a FREE event.

FREE gift wrapping

Bring your gifts and we will wrap them for you! Wrapping paper and ribbon will be provided by the MS Center.

 
When:   Friday, December 19
Time:  Noon – 3 p.m.
Where:  MS Center at Swedish
1600 Jefferson Street, A Level
Seattle, WA 98122
RSVP:  Mallory Higgins at 206.991.2200 or just drop by!

Catching Kayla – High School Girl with MS Becomes Top Runner in Country

Mallory Higgins

Mallory Higgins
Education Coordinator and Marketing Specialist, Swedish MS Center

Here is a remarkable story about high school runner Kayla Montgomery -- who, despite being diagnosed with multiple sclerosis, has become one of the best young distance runners in the country. Click here to watch the video.

Multiple Sclerosis and Affordable Care Act

Mallory Higgins

Mallory Higgins
Education Coordinator and Marketing Specialist, Swedish MS Center

Take a look at this panel discussion interview where Swedish Multiple Sclerosis Center neurologist Dr. James Bowen and a nationally recognized health insurance expert discuss the Affordable Care Act (ACA) and enrollment in the Health Insurance Marketplace as it specifically relates to the needs of the multiple sclerosis community. Some of the key topics include cost and coverage of MS medications, the benefits of a selecting a silver-level plan, ways to ensure access to care, expansion of Medicaid, and how to appeal coverage denial.
 

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Top Authors

Mallory Higgins

Mallory Higgins
Education Coordinator and Marketing Specialist, Swedish MS Center

James D. Bowen, MD
Kate Floyd

Kate Floyd
Education Coordinator, Swedish MS Center

Bobbie (Barbara) J. Severson, ARNP

Bobbie (Barbara) J. Severson, ARNP
ARNP, Swedish Multiple Sclerosis Center

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