Patient Support and Resources

Patient Support and Resources

Swedish Neuroscience Institute Epilepsy

Patient Support and Resources

Welcome to our new Swedish Neuroscience Institute Epilepsy Center Resource Page! We have created this page in an effort to assist our patients and their family members in finding community resources that may help them maintain safety and improve/maintain quality of life. The following list of resources represents a small fraction of the organizations and online tools available to individuals seeking resources. Please use independent judgment and request references when considering the use of services from any professional. We do not endorse any of these resources and request that you contact these agencies directly for their program criteria.

While the resources listed below may provide national information, most of them may be specific towards Washington State/Pacific Northwest area.  Please contact the NATIONAL INFORMATION AND REFERRAL SERVICES: 211 (http://www.211.org/) for resources within your specific area.

EPILEPSY AND SEIZURE SPECIFIC AGENCIES
-Brain Injury Resource Center (http://www.headinjury.com/)

-Epilepsy Foundation Northwest (www.epilepsynw.org)
-Epilepsy (www.epilepsy.com)
-Cleveland Clinic information on Non-Epileptic Seizures (http://my.clevelandclinic.org/Documents/Epilepsy_Center/08_NEU_060_NonEpilepsyPatient_v2.pdf)

-Seizure Tracker (https://seizuretracker.com/)

 

PREPARING FOR YOUR HOSPITAL STAY OR OUTPATIENT VISIT

-Initial Visit Patient Questionnaire

-FAQs regarding VEEG monitoring

-Preparation for VEEG Monitoring
-Swedish Medical Group Financial Application - Please contact the Financial Assistance Counselors for additional information at 206-386-2646.

-Accessibility for Patients with Special Needs (http://www.swedish.org/patient-visitor-info/accessibility)
-Adult Meal Hints and Ideas 
-Adult CH Parking Information (http://www.swedish.org/locations/cherry-hill-campus/campus-parking)
-Angel Bus (http://www.angel-bus.org/)
-Angel Flight West provides free, non-emergency air travel for children and adults with serious medical conditions (www.angelflight.org/)
-DSHS Kinship Care (http://www.dshs.wa.gov/kinshipcare/)
-DSHS Kinship Caregiver’s Guide (http://www.dshs.wa.gov/pdf/Publications/22-1119.pdf)
-Durable Medical Equipment Information and Agencies
-Local Seattle Hotel and Lodging
-Medicaid Transportation and Lodging Services
-Medical Records -Please contact Health Information Management 206-320-2626 or visit their website at: (http://www.swedish.org/Patient-Visitor-Info/Medical-Records#axzz2AF1isoEz)
-Non Emergent Transportation Resources
-Patient Process for Alaska Medicaid Lodging - Alaska DSHS  (http://dhss.alaska.gov/dhcs/Pages/medicaid_medicare/transportation.aspx)

-Patient and Provider Process for Idaho Medicaid Transportation 
Idaho DSHS (http://healthandwelfare.idaho.gov/Medical/Medicaid/MedicalCare/MedicalTransportation/tabid/704/Default.aspx)
Idaho Access2Care (http://www.idahonemt.net/documents/AMR_Access2Care_FINAL-English.pdf)

-Patient and Provider Process for Montana Medicaid Lodging
DSHS Montana (http://www.dphhs.mt.gov/medicaid/transportation/transportationassistancebrochure.pdf)

-Pediatric Meal Hints and Ideas FH 
-Pediatric FH Parking Information
-SMG Friends and Family ROI
-Washington State Ferry Preferential Loading Pass

 

 

 

AMERICAN DISABILITIES ACT - SPECIAL ACCOMMODATIONS FOR EDUCATION AND EMPLOYMENT 
-Americans with Disabilities Act (http://www.ada.gov)

-Bride Ministries for Disability Concerns (http://www.bridgemin.org)
-Department of Social and Health Services Divsion of Developmental Disabilities (http://www.dshs.wa.gov/ddd/eligible.shtml )

-Disability Resources (http://www.disabilityresources.org/WASHINGTON.html)

-Division of Vocational Rehabilitation 1-800-637-5627 or (http://www.dshs.wa.gov/dvr/) – For individuals with a disability that would like to work but face substantial barriers to finding or keeping a job.

-Equal Employment Opportunity Commission (http://www.eeoc.gov/facts/epilepsy.html)

-Families and Advocates Partnership for Education (FAPE) (http://www.fape.org/)
-Job Accommodation Network (JAN) (http://www.askjan.org )

-Seattle Neurological Vocational Services Center (http://nvsrehab.org)
-University of Washington’s DO IT Program (http://www.washington.edu/doit/) DO-IT Center promotes the success of individuals with disabilities in postsecondary education and careers, using technology as an empowering tool.
-University of Washington Driving Rehabilitation Program(http://sci.washington.edu/info/driving_program.asp)
-Washington State Human Rights Commission (http://www.hum.wa.gov/)

BASIC NEEDS, CRISIS & EMERGENCY RESOURCES
Please visit the following internet websites for further information:
 

-Asian Counseling and Referral Service (http://www.acrs.org)

-Bellevue Life Spring (http://www.bellevuelifespring.org)

-Catholic Community Services (www.ccsww.org)

-Chinese Information and Service Center (http://cisc-seattle.org)

-City of Seattle Affordable Housing Providers List (http://www.seattle.gov/housing/HousingProviders.pdf)  

-Crisis Clinic (www.CrisisClinic.org)

-Crisis Clinic Emergency Services Brochures (http://crisisclinic.org/education/emergency-services-brochures/)
-Department of Social and Health Services Telephone Assistance Program (http://www.dshs.wa.gov/wtap.shtml

-El Centro De La Raza (http://www.elcentrodelaraza.com)

-Habitat for Humanity (http://www.habitat.org

-Hopelink (http://www.hope-link.org)

-Laser Voicemail (http://www.laservoicemail.com/)

-Poison Control 1800-542-6319

-Salvation Army (http://www.salvationarmyusa.org)

-Senior Information and Assistance of Snohomish County (www.sssc.org)
-Senior Services (www.Seniorservices.org) for assistance with Information and Referral, transportation, COPES,  other King County resources for adults 60+
-St. Joseph's Baby Corner (http://www.seattlebabycorner.org/)

-Washington State Crisis Lines
 

DENTAL, MEDICAL AND MENTAL HEALTH
-AOA Foundation (http://www.aoafoundation.org/vision-usa/) Vision Assistance Program
-Bed Alarms through BedSeizureAlarm.com (http://www.bedseizurealarm.com)
-Crisis Clinic: If you are in an emotional crisis and live in King County, you may contact the 24-Hour Crisis Line through Crisis Clinic at 206-461-3222 or Toll-Free at 1866-427-4747 or through the TDD Line 206-461-3219. This is an anonymous and confidential service to assist you in the specifics of your situation and work with you on an effective answer. They are not equipped to respond to crisis oriented e-mails so please contact them directly.

If you are seeking information on health and human services, you may look at their Community Information Page at (www.crisisclinic.org).

If you are seeking assistance outside of King County, you may contact the 211 Community Information Line by dialing 2-1-1 or Toll-Free 1800-621-4636 or TDD Line 206-461-3610.

-Crisis Solution Center through DESC (http://www.desc.org/crisis_solutions_FAQs.html)
-Durable Medical Equipment Information and Agencies
-
Geriatric Regional Assessment Team (https://www.evergreenhealth.com/for_patients/medical_services/home_care/behavioral_health_services/geriatric_regional_assessment_team/)

-Helmets for Patients with Epilepsy (http://plument.com/) or (http://www.guardianhelmets.com/)
-King County Crisis and Commitment Services for Mental Health (http://www.kingcounty.gov/healthservices/MentalHealth/Services/CrisisServices/CommitmentServices.aspx)
-King County Treatment for Co-Occuring Disorders (http://www.kingcounty.gov/healthservices/MHSA/Cooccurring.aspx)
-Low Cost or Sliding Scale Public Health Centers in Seattle and King County – Medical (http://www.kingcounty.gov/healthservices/health/locations.aspx)
-Low Cost or Sliding Scale Public Health Centers in Seattle and King County – Dental (http://www.kingcounty.gov/healthservices/health/locations/dental.aspx)
-Low Cost or Sliding Scale Public Health Centers in Seattle and King County – Mental Health (http://www.kingcounty.gov/healthservices/MentalHealth/Resources/OtherOptions.aspx)


-Helpful tips to finding a mental health provider:
1.)  Identify the reason why you are seeking mental health services to help you identify practitioners with the right set of skills and specialization.
2.)  Discuss this with your primary care provider to rule out any physical problems that may contribute to the symptoms and to see if they have any recommendations on mental health providers.  You may also check with your employer to see if they offer Employee Assistance Programs.  Local and national mental health organizations such as National Alliance on Mental Illness (NAMI www.nami.org) may also provide a list of providers within your area.  Trusted friends, family and clergy may also provide recommendations. 
3.)  Contact your insurance to understand your insurance coverage and for how long that period of coverage lasts.  It is important to identify professionals who are within your preferred network of approved service providers and if there are any restrictions to seeing a specific type of provider.  It is also helpful to know your out of pocket responsibility.
4.)  Prepare a list of candidate providers based on their specialization, skills, insurance coverage and location.  Research their websites and their professional association websites (i.e. American Medical Association, American Psychiatric Association, National Association of Social Workers, American Psychological Association, Association for Behavioral and Cognitive Therapies, etc.) to see if they have further information and reviews regarding the provider.  You may verify licensing credentials at:  http://www.doh.wa.gov/LicensesPermitsandCertificates/ProviderCredentialSearch.aspx.
5.)  Prepare a list of questions that will help you select the best mental health provider.  Contact the mental health providers on your list and see if they are able to do a free consultation either over the phone or in person to determine if you are comfortable talking to this person and if they are able to provide the service/specialty that you are looking for.  It is important to find out about their licensure, certification, skills, approach to treatment and experience as well as their hours of availability and fees. 
6.)  After your initial meeting with a mental health provider, reflect on your feelings and determine if this is a provider that you may establish a therapeutic relationship with.  Do not be afraid to ask them questions. 

-SightLife for Sight and Hearing Impairment Services (www.sightlife.org)
-UW Driving Rehabilitation Program (http://sci.washington.edu/info/driving_program.asp)

-Veterans Administration Medical Center 206-762-1010 (http://www.va.gov/)

 

DOMESTIC VIOLENCE
-Washington State Domestic Violence Hotline: 800-562-6025 (voice/TTY)
-National Domestic Violence Hotline: 800-799-7233 (voice) or 800-787-3224 (TTY)

 

END-OF-LIFE, SUPPORT GROUP, GRIEF AND LOSS
-ARCH National Respite Locator (http://archrespite.org/respitelocator) for respite care assistance
-Association of Wish Granting Organizations (http://www.awgo.org/)
-Attorney General’s Office Dealing With Death (http://www.atg.wa.gov/DealingWithDeath.aspx)
-Burial, Cremation and Funeral Homes List

-Cascade Memorial (http://www.cascadememorial.com/) for low cost cremation and memorials
-Centering Corporation (http://centering.org/) provides education and resources for the bereaved
-Childcare Aware Resources (http://www.childcarenet.org/)
-Compassionate Friends (http://www.compassionatefriends.org/)
-Department of Veterans Affairs Burial and Memorial Benefits (http://www.cem.va.gov/bbene/eligible.asp)
-Epilepsy Support Groups through Epilepsy Foundation Northwest (http://www.epilepsynw.org/programs/education-and-networking-groups)
-Family Services (www.pepsgroup.org)
-Food Banks (http://www.seattle.gov/humanservices/emergencyservices/docs/FoodBanksSeattleKingCounty.pdf)
-Gilda's Club Support Group (http://www.gildasclubseattle.org/resources/Support.php?tid=4)
-Grief Share (http://www.griefshare.org/)
-GriefWorks (http://www.griefworks.org/)
-Healing Center (http://www.healingcenterseattle.org)
-Hello Grief: (http://www.hellogrief.org/resources/washington/t-support)
-Hospice Foundation: (http://www.hospicefoundation.org/supportgroup)
-King County Widowed Information and Consultation Services (http://kcwics.org/index.html
-Make A Wish Foundation (http://www.wish.org/)
-Organizations Related to Donation and Transplantation (http://organdonor.gov)
-People's Memorial (http://peoplesmemorial.org/) for low cost burial and cremation
-Seattle Children's Journey Program (http://www.seattlechildrens.org/about/stories/seattle-childrens-journey-program/)
-Sudden Unexpected Death in Epilepsy (SUDEP) (www.dannydid.org/sudep/)
-Swedish Medical Center Grief Support: http://www.swedish.org/classes-and-resources/bereavement-support
-TAPS (Tragedy Assistance Program for Survivors http://www.taps.org/ a non-profit Veteran Service Organization)
-TEARS Foundation (http://www.thetearsfoundation.org/)
-Twilight Wish Foundation (http://www.twilightwish.org/our-mission/) grants wishes to 68+ seniors, poverty level and/or lives in a nursing home
-What to Do When Someone Close to You Dies (http://www.funeralplan.com/funeralplan/about/whattodo.html)

INSURANCE, FINANCIAL AND PRESCRIPTION ASSISTANCE PROGRAMS
-List of Common Epilepsy Prescription and Copay Assistance Programs
-AOA Foundation (http://www.aoafoundation.org/vision-usa/) Vision Assistance Program
-Community Health Access Program (http://www.kingcounty.gov/healthservices/health/personal/insurance/CHAP.aspx)
-Department of Labor (http://www.dol.gov/)
-Department of Social and Health Services (http://www1.dshs.wa.gov/)
-Project Access Northwest (http://projectaccessnw.org/contact.html)
-Social Security (http://www.socialsecurity.gov/seattle/)
-Social Security Compassionate Allowances (http://www.ssa.gov/compassionateallowances/ )
-Washington State Health Benefits Exchange (http://www.wahbexchange.org/)
-Washington State Health Insurance Pool (https://www.wship.org/Default.asp)
-Washington State Health Plan Finder (https://www.wahealthplanfinder.org/) Find out about the Medicaid Expansion Program and see what type of health care plans/financial assistance may be available to you 
-Washington State Office of the Insurance Commissioner Statewide Health Insurance Benefits Advisors (SHIBA) (http://www.insurance.wa.gov/shiba/index.shtml)

LEGAL SERVICES, GUARDIANSHIP, LONG-TERM CARE PLANNING, ADVANCED CARE DIRECTIVES AND LIVING WILLS

-AARP (http://www.aarp.org/)
-Caring from a Distance (http://www.cfad.org)
-Department of Social and Health Services Aging and Disabilities Services Administration (www.adsa.dshs.wa.gov)

-Department of Licensing - WA State Forms (www.dol.wa.gov/forms):
Disabled Placard (http://www.dol.wa.gov/forms/420073.pdf)
Driver Evaluation Request  (http://www.dol.wa.gov/forms/500008.pdf)
License Surrender (http://www.dol.wa.gov/forms/520011.pdf)
Physical Examination Request (http://www.dol.wa.gov/forms/500035w.pdf)
Reporting Unsafe Drivers (http://www.dol.wa.gov/driverslicense/reportunsafe.html)
Vision Examination (http://www.dol.wa.gov/forms/500033w.pdf)

-Epilepsy Foundation Driving Laws By State (http://www.epilepsyfoundation.org/resources/Driving-Laws-by-State.cfm)
-Family Care Navigator (http://www.caregiver.org)
-King County Guardianship Forms (http://www.kingcounty.gov/courts/scforms/guardianship.aspx)
-Northwest Justice Project (http://www.nwjustice.org)
-Office of Inspector General for reporting unsafe pilots (http://www.oig.dot.gov/Hotline)

 -Senior Services (http://seniorservices.org/)
-Swedish Medical Center Durable Power of Attorney for Health Care, FAQs, Living Wills (http://www.swedish.org/Patient-Visitor-Info/Patient-Information/Preparing-for-Your-Hospital-Stay/Advance-Directives#axzz2AF1isoEz
-Washington State Bar Association (http://www.wsba.org/)
-United States Attorney Legal Services Pro Bono Programs – Washington State (http://www.usattorneylegalservices.com/free-legal-aid-washington.html )
-United States Immigration Support (http://www.usimmigrationsupport.org/contact.html)

PEDIATRICS AND PARENTS

-Adolescent Health Transition Project (http://depts.washington.edu/healthtr/index.html) for parents and children wishing to plan transition from adolescent to adult care

-Child Care Aware of America (http://www.usa.childcareaware.org/)
-DSHS Kinship Care (http://www.dshs.wa.gov/kinshipcare/)
-DSHS Kinship Caregiver’s Guide (http://www.dshs.wa.gov/pdf/Publications/22-1119.pdf)
-Epilepsy and My Child (http://www.epilepsyandmychild.org)
-Epilepsy Mom (http://epilepsymoms.com/) for mothers of patients who have Epilepsy
-Epilepsy Parent Support Group (http://www.epilepsysupportnw.org/)
-King County Public Health Nurses (http://www.kingcounty.gov/healthservices/health/locations/phn.aspx)
-Lotsa Helping Hands (http://nac/lotsahelpinghands.com)
-Mamapedia (http://www.mamapedia.com/article/moms-with-epilepsy) for moms with Epilepsy
-Mature Minor Doctrine (http://www.washingtonlawhelp.org/files/C9D2EA3F-0350-D9AF-ACAE-BF37E9BC9FFA/attachments/3924E318-9C45-4556-F8C9-89368DAE1E74/216941minors_health_care_rights.pdf)  A summary of health care services that can be provided to minors without parental consent per Washingtonlawhelp.org
-P2PUSA (http://www.p2pusa.org)
-Parent Trust for Washington Children (http://www.parenttrust.org/)
-Seattle Children's Home (http://www.seattlechildrenshome.org/) a private, not-for-profit organization that responds to the mental health needs of children and their families throughout Seattle, King County and Washington State
-The Center for Children with Special Needs (http://cshcn.org/)
-The Arc of Washington Parent to Parent USA (http://www.p2pusa.org/)
-Washington State Department of Early Learning (http://www.del.wa.gov/)
-Washington State Father’s Network (http://fathersnetwork.org/) for fathers of patients who have Epilepsy

REPORTING ABUSE AND NEGLECT
If you suspect abuse/neglect of a vulnerable adult or child, please call 1-866-363-4276 or visit (http://www.dshs.wa.gov/endharm.shtml) to find out more about ways to report your concerns.

REPORTING AMERICANS WITH DISABILITIES ACT GRIEVANCE
If you feel that the City of Seattle has not fulfilled ADA requirements, please report it to the City's Customer Service Bureau at 684-CITY (2489) or view their online website at: (http://www.seattle.gov/civilrights/ADA.htm). To read more about the Americans with Disabilities Act Information, you may visit the Washington State Legislature website at: (http://www.leg.wa.gov/legislature/pages/adainfo.aspx)

REPORTING EDUCATIONAL CONCERNS
The Office of the Education Ombudsman (OEO) resolves complaints, disputes, and problems between families and elementary and secondary public schools in all areas that affect student learning. If you have a concern and would like to receive assistance, you may contact Toll-free number: 1-866-297-2597 and a phone interpreter is also available. You may also visit their website at: (http://www.governor.wa.gov/oeo/) for further information.

REPORTING MENTAL HEALTH CONCERNS
If you or a family member receive services for mental health services through a publicly funded mental health system and have complaints/grievances/concerns, you may contact the Mental Health Ombudsman at the 24-Hour Confidential Message Service: 206-205-5329 or Toll Free: 1-800-790-8049 or visit: (http://www.kingcounty.gov/healthservices/MentalHealth/Services/ombuds.aspx) for further information.

 

 

SUBSTANCE ABUSE, SMOKING CESSATION AND GAMBLING ADDICTION PROGRAMS

-Become an Ex Smoker (http://www.becomeanex.org/)
-Drug & Alcohol Consulting Services (www.lakesidemilam.com) 1-888-699-DACS
-Genesis House (http://www.genesishouse.com/) community based residential drug treatment program
-King County (http://www.kingcounty.gov/healthservices/MHSA.aspx)
-Smoke Free Washington (http://www.smokefreewashington.com/)
-Veteran's Affairs Substance Use Disorder Program Locator (http://www2.va.gov/directory/guide/SUD_flsh.asp?isFlash=1
-Washington State Department of Health Tobacco Quit Line (http://www.doh.wa.gov/YouandYourFamily/IllnessandDisease/TobaccoRelated/QuittingTobacco.aspx)

-Washington Recovery Help Line (http://warecoveryhelpline.org)

THERAPY DOGS
-Canine Assistants – (Georgia) http://www.canineassistants.org
-Brigadoon Youth & Service Dog Programs – (Bellingham, WA) http://www.brigadoondogs.org
-Prison Pet Partnership Program – (Gig Harbor, WA) http://www.prisonpetpartnership.org
-Paws with a Cause – (Michigan) http://www.pawswithacause.org
-Delta Society – (Bellevue, WA) http://www.deltasociety.org
-Summit Assistance Dogs – (Anacortes, WA) http://www.summitdogs.org
-Joys of Living Assistance Dogs – (Keizer, OR) http://www.joydogs.org
-Dogs for the Deaf – (Central Point, OR) http://www.dogsforthedeaf.org
-Assistance Dogs International – (California) http://www.assistancedogsinternational.org
-International Association of Assistance Dog Partners – (Michigan) http://www.iaadp.org
-Psychiatric Service Dog Society – (Virginia) http://www.psychdog.org
 

TRANSPORTATION RESOURCES

-Air Care Alliance (http://www.aircarealliance.org/directory-groups)
-ACCESS Transportation (http://metro.kingcounty.gov/tops/accessible/programs/access.html)
-Angel Bus (http://www.angel-bus.org/)
-Angel Flight West provides free, non-emergency air travel for children and adults with serious medical conditions  (http://www.angelflightwest.org/)
-Dial A Ride Transporation (http://www.dialaride.org/)
-Epilepsy Foundation J. Kiffin Penry Patient Travel Assistance Program (https://www.epilepsyfoundation.org/resources/J-Kiffin-Penry-Patient-Travel-Assistance-Fund.cfm)
-Hopelink Transportation (
http://www.hope-link.org/)
-National Patient Travel Center (http://www.patienttravel.org/)
-Paratransit Services (http://www.wanemt.com/)
-People for People (http://www.pfp.org/pfp/Brokering/Transportation.aspx)
-Senior Services (http://www.seniorservices.org/transportation/Home.aspx)
-UW Driving Rehabilitation Program (http://sci.washington.edu/info/driving_program.asp)

If you have any further resource questions or concerns, you may contact the Epilepsy Social Worker at 206-320-3492.  The links directly take you to the agency/resource, if you experience any problems with the links please contact the agency/resource directly.  We have created this page in an effort to assist our patients and their family members in finding community resources that may help them maintain safety and improve/maintain quality of life. The list of resources represents a small fraction of the organizations and online tools available to individuals seeking resources. Please use independent judgment and request references when considering the use of services from any professional. We do not endorse any of these resources and request that you contact these agencies directly for their program criteria.

Created: November 20, 2012

Updated: July 25, 2014

 

WE HAVE LAUNCHED AN EPILEPSY PATIENT SUPPORT AND RESOURCE SERIES!  THIS IS DESIGNED FOR PATIENTS AND FAMILY MEMBERS WHO ARE INTERESTED IN ATTENDING IN-SERVICES THAT HIGHLIGHT RESOURCHES THAT OUR PATIENTS MAY BE ELIGIBLE FOR.  PLEASE CONTINUE TO CHECK OUR PAGE FOR THE LATEST EVENTS.

 

Upcoming Events:   To Be Determined 

Past Events:

-Legal Guardianship, Friday, January 10, 2014 from 1-3 p.m.  

-Neurological Vocational Services Friday, November 1, 2013. 

-Introduction to Developmental Disabilities Administration, Friday, September 27, 2013.  

Contact Information

Epilepsy Center
550 17th Avenue
Suite 540
Seattle, WA 98122
Phone: 206-320-3492
Map & Directions

Need a second opinion?

Call 206-320-3492 to make an appointment now.

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Program Accreditation
 

epilepsy_naec_aside.jpg

Our program is accredited by the National Association of Epilepsy Centers as a level-four epilepsy center, indicating the most comprehensive level of care for patients with seizures.


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Swedish is constantly working to ensure patients with debilitating neurological disorders have access to the best treatment options, the latest technology, and state-of-the-art facilities.

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