Swedish Multiple Sclerosis Blog

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Do the unexpected when living with multiple sclerosis (MS)

September 30, 2015
Sixty seconds of free fall at 120 miles per hour followed by a six minute float from 12,500 feet above the ground. Scary? Nah. Not to Jenel Kludsikofsky.

Jenel has been skydiving five times since being diagnosed with MS, and she was decidedly not nervous the first time. After making the decision to float the sky before turning 40, Jenel immediately fell in love with the sport. "I find it liberating, and it puts me on a 'normal' level with non-MS people." Having always jumped tandem, Jenel says the instructors treat you as though you are without disability. When you are one with the clouds, your physical shortcomings no longer provide any complications.


MS neurologist Pavle Repovic talks about TRANSFORMS trial in Neurology Today

September 18, 2015

A post-hoc analysis of follow-up data from the TRANSFORMS trial suggests that early disease activity during a patient’s first year on fingolimod predicts longer-term outcomes in multiple sclerosis. Click here to read the analysis by Pavle Repovic, a neurologist at the Swedish Multiple Sclerosis Center.

"Life goes on" despite multiple sclerosis

September 03, 2015
Ed. Note: This blog post was written by Ed Johnson about his experiences before and after being diagnosed with MS.

I miss coaching college and high school volleyball. I was a college volleyball coach for 15 years with various schools. Perhaps the high point was when our Missouri Valley College men’s team was ranked number two in the entire nation. We were so good that year that many bigger-name schools refused to play against us, fearing embarrassment if our smaller school won. That was before M.S.

Mental health apps: help when you need it

August 28, 2015
Millions of Americans suffer from some form of mental health problems. It is estimated that in the U.S., about 40 million adults suffer from anxiety, about 20 million adults suffer from depression, and another 8 million suffer from PTSD. Many more people, about 78 million, report suffering from high levels of stress with poor health in self or a family member being the primary reason for the stress. Unfortunately research consistently shows that two-thirds of these people do not seek out treatment for their problems. And those who are interested in help often run into barriers that prevent them from receiving treatment. Barriers can include lack of or inadequate health insurance, lack of mental health resources in rural or impoverished areas or the stigma of getting help for mental health problems. 

Apps on smart phones could help address some of these barriers. There are hundreds of apps focused on helping people with anxiety, depression, PTSD, stress and other symptoms.  

Updated diagnostic criteria for neuromyelitis optica spectrum disorders (NMOSD)

August 27, 2015
Neuromyelitis optica (NMO) is a neuroinflammatory disorder characterized by optic neuritis and extensive myelitis. Like multiple sclerosis (MS), it can have a relapsing remitting disease course. Some of the NMO patients tend to run a more aggressive disease course. Most patients with NMO have Ig G antibodies to the aquaporin-4 water channel (AQP4).

In July 2015, experts from International Panel for NMO Diagnosis (Wingerchuk DM et al. Neurology 2015 Jul 14) provided updated consensus recommendations for NMO spectrum disorders (NMOSD). 

Bike the US for MS donates $25,000 to Swedish MS Center

August 20, 2015
For the fourth year in a row, the committed riders of Bike the US for MS arrived at the Peddler Brewing Co. in Ballard this month to present a $25,000 gift to the Swedish MS Center in honor of its excellence in MS care.

Switching from Tysabri to another MS medication

August 18, 2015
There has been debate about how to switch patients with multiple sclerosis (MS) from Tysabri to other medications. This happens most often when patients on Tysabri become positive for antibodies to the JC virus. Patients that have these antibodies are at increased risk of a serious infection called progressive multifocal leukoencephalopathy (PML).

New research has studied varying timelines for starting a new medication after Tysabri.

Swedish MS Center Roadshow headed to Yakima

August 12, 2015

Experts from the Multiple Sclerosis Center at Swedish Neuroscience Institute and the National Multiple Sclerosis Society are bringing this traveling roadshow of Multiple Sclerosis education and information to Yakima, Washington on Sept. 19, 2015.

Can multiple sclerosis result in premature death?

August 11, 2015

While we often counsel patients that multiple sclerosis (MS) does not often result in death, we have noticed some MS patients with aggressive disease who clearly succumb prematurely. To understand survival in the MS population with a matched cohort from the general population, a population based study is needed to evaluate the association of comorbidity with survival in both populations. 

MS Center BBQ

July 09, 2015
Come join the Swedish MS Center for the Summer BBQ on July 25! There will be a catered lunch with live music, as well as a talk by Dr. James Bowen.

When: Saturday, July 25
Time: 12:00 – 4:00 p.m.
Where: MS Center at Swedish
1600 E. Jefferson St., A Level
Seattle, WA 98122
RSVP: Janice Huertas, 206.320.2200
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