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Talking to kids about cancer

What do I tell my kids?” 

This is often the first question I’m asked by a parent with a new cancer diagnosis.  One of the most important things for parents to remember is that they know their children better than anyone else and they love them more than anyone…they can trust themselves to do this well.
 
Beyond that general reassurance, however, there are some practical tips for talking with children about a cancer diagnosis. 
 
Prepare for the conversation 
 
Think about your goals for the conversation.  What does your child need to know?  How you can help your child understand what’s going on?  How do you want your child to feel after the talk?  Who should tell your child you have cancer and can the person talking to your child stay relatively calm?
 
When and where should I have this conversation?  You don’t have to wait until you have all the answers.  Be prepared to ...

Spiders and Bees and Bugs, Oh My! Treating insect bites and stings

Another beautiful Seattle summer is just around the corner.  As we stare out windows and wait for our long days of sunshine to begin, know this – the bugs are doing the same thing!  Any day now all our biting, stinging, and pinching friends will begin to appear.  Make sure you prevent bites with insect repellants.  The American Academy of Pediatrics recommends using repellants containing 30% or less of DEET for all children older than 2 months of age.  But if a bite happens, arm yourself (and your medicine cabinet) with a treatment plan to get your kids back outside ASAP.
 
Treatment for ...

Helping kids heal with music and technology

A young girl is cowering in the corner - it is the first day her care-taker has left her side. She has backed herself into a corner as far from anyone as possible. She appears to be filled with anxiety. Staff members and nurses try calming her, but nothing seems to work.

With her back turned, the little girl doesn’t notice a young man entering the room. He is holding a tool, one of which the full power and potential is still unknown to most. Even though he has witnessed its abilities before, what happens next still takes even him by surprise.

Not knowing what to say, he says nothing at all. He lifts his instrument and strikes the first chord. The girl stops. He continues to play. The girl turns and slides to the floor. The young man sinks to his knees, the same level as the girl. Strumming his ukulele the young man begins to sing. The little girl begins to scoot herself across the floor, 20 feet to where the young man kneels, closer and closer until her knees touch his.

There are gasps coming from the doorway, as a handful of hospital staff and nurses witness to an amazing transformation. In a flip of a switch, the little girl went from utter anxiety to calm and happy, soothed by the sound of music. As the young man finishes his song, the little girl smiles, reaches out her hand to touch his, then falls back, smiling and laughing.


This is the story of Melodic Caring Project Founder, Levi Ware, on his most recent visit to provide live music to pediatric patients at Swedish First Hill.

“I've been playing music for a long time and I've seen a lot of amazing things happen when music is introduced into certain situations. What happened on the Pediatric Unit at Swedish was one of the most wonderful, beautiful and undeniably powerful music experiences I've had.  ...

Think about injury prevention when returning to baseball season

Baseball season is finally here! As we watch our Major League Baseball heroes take the field this April, kids of all ages will be returning to the field after winter break and time off from practicing. 

It is important that our kids return safely to help prevent overuse injuries from occurring during the season. Common overuse injuries in baseball are injuries to the elbow (ulnar collateral ligament, UCL) and shoulder in the throwing arm. A proper warm up, maintaining an age appropriate pitch count and good throwing mechanics are essential to preventing overuse injuries. 
 
Here are some specifics to keep in mind:

New Washington State Law to Help Children with Food Allergies

It is with great happiness that I update an earlier blog posted several months ago with the news that patients with food allergies now have a law that helps them afford their treatment.  On Friday March 28th, Governor Jay Inslee signed a law that makes Washington the most recent state in the country to set a mandate for medical coverage of elemental formulas in the treatment of Eosinophilic GI disorders (EGIDs).  EGIDs are a severe form of gastrointestinal inflammation that results from food allergy. 


New nutrition labels, same healthy eating advice

We all know that as a nation, we are getting bigger and heavier. Worse still, our future - our children- are becoming obese and unhealthy at increasingly younger ages. For decades, the scourge of obesity was blamed on a high calorie, high fat diet. Turns out, we have probably been doing it wrong all these years and our bulging waistline attests to this colossal failure. Research and the medical community now have increasing evidence that the real villain of the story is a very sweet little molecule called fructose. Fructose is what gives us the sweetness in table sugar (sucrose)…also in brown sugar, honey, agave, and of course, high fructose corn syrup. Call it by any name, but sugars are dangerous to our health. Fructose is addictive, much in the same way as alcohol and illicit drugs are. In fact, sugar (fructose) metabolism closely replicates alcohol metabolism except for the acute effects on brain. Sugar has been likened to alcohol without the buzz!

You may already have heard about First Lady Michelle Obama’s work with the FDA which has led to newly proposed changes to nutrition labels on packaged foods. The amount of sugars, specifically, “added sugars” will be part of that new label. I am not implying that a zero added sugar diet will be the panacea for the pandemic of obesity and ill health. We still need to eat healthy and exercise right. There is no magic pill, no startling new advice. Remember what our grandmothers used to say:
 

If your newborn is diagnosed with hypospadias

As a pediatric urologist, I am frequently asked to consult with parents whose newborn son has hypospadias.  

Hypospadias is usually diagnosed during the physical exam right after the baby is born.  When parents see the abnormal penile anatomy they naturally want to learn about the diagnosis and understand what, if anything, needs to be done. Answering these questions, discussing options, and performing reconstructive surgery to help restore normal penis appearance and function are some of the most rewarding things I do as a pediatric urologist. 

I would like parents who have a son born with hypospadias to be reassured that the anatomy can be reconstructed, the surgery is well tolerated, and a good outcome with a normal, or near normal, penis appearance and function can be achieved.

It is not urgent to treat newborns with hypospadias because they can usually pee (urinate) just fine through their existing urinary opening.

In fact, when hypospadias is the only condition noted in a newborn physical exam there is a low chance of additional developmental abnormalities. Additional tests and studies on the baby are usually not necessary.

It is important to note that if any unusual shape of the penis or urethral opening (where the pee comes out) is present then circumcision (if desired) should not be performed until after the child is examined by a pediatric urologist. This is because the pediatric urologist may need to use the foreskin tissue for the surgical repair. 

Here are answers to some commonly asked questions:  

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