'Genetic Cancer Counseling & Tests' posts
This is often the first question I’m asked by a parent with a new cancer diagnosis. One of the most important things for parents to remember is that they know their children better than anyone else and they love them more than anyone…they can trust themselves to do this well.
Beyond that general reassurance, however, there are some practical tips for talking with children about a cancer diagnosis.
Prepare for the conversation
Think about your goals for the conversation. What does your child need to know? How you can help your child understand what’s going on? How do you want your child to feel after the talk? Who should tell your child you have cancer and can the person talking to your child stay relatively calm?
When and where should I have this conversation? You don’t have to wait until you have all the answers. Be prepared to ...
How do we find early cancers?
Some cancer screenings can be done yourself at home at essentially no cost or risk. This includes regular self-examination of the breasts, testicles and skin. Home fecal occult blood testing can also be done to screen for colorectal cancer. Additional information on cancer screening and self-examinations can be found on websites such as www.cancer.org or www.webmd.com.
Other screening requires medical interventions. There is good evidence that well-targeted screening saves lives. However, screening tests such as mammography, colonoscopy and prostate-specific antigen (PSA) are ...
Here at the Swedish Cancer Institute (SCI), we understand that individuals cope in their own unique ways, and that receiving personalized education and support is important in the healing process. For this reason, the SCI is devoted to providing complementary supportive services for newly diagnosed patients, those undergoing treatment, and those who have completed treatment, as well as their caregivers.
The SCI offers programs that promote education, hope, and healing. Many of these programs are offered free of charge, while others are offered on a sliding scale. These integrated care programs include:
- American Cancer Society Patient Navigation: The American Cancer Society Patient Navigator helps patients find resources related to financial assistance, transportation, access to wigs and prosthetics, and much more.
- Art Therapy: Art therapy is a confidential, supportive, and individualized experience for examining health issues through visual and verbal self-exploration.
- Cancer Rehabilitation: Cancer rehabilitation integrates medical management of cancer treatment-related side effects with a variety of exercise therapies.
- Health Education: The Swedish Cancer Education Centers offer complementary educational materials, innovative learning opportunities, and patient education classes.
- Genetic Counseling and Testing: Genetic testing is available for individuals to determine their risk for developing certain cancers.
- Massage Therapy: Massage therapy may help with cancer-related pain, fatigue and nausea.
- Naturopathic Medicine: Combining modern science with natural remedies, naturopathic doctors are available for consultation and treat¬ment through coordination with the patient’s oncologist.
- Nutrition Care Services: Nutritionists are available to help patients and caregivers make healthy dietary choices during cancer treatment.
- Psychiatry: Psychiatrists help patients and caregivers maintain the emotional and mental well-being needed to cope with stresses of cancer.
- Oncology Social Work: Licensed oncology social workers provide patients and caregivers ongoing counseling and assistance.
- Support Groups: Support groups for patients and caregivers are offered weekly, creating an environment for people to share their feelings with others going through similar experiences.
Patients often hear that it’s important to find a strong support system during and after treatment; this may include a partner, sibling, parent, child or close friend. These are ...
I recently attended the Southwest Oncology Group (SWOG) meeting, a consortium of research institutions doing clinical trials on cancer. The conference highlighted how new research will remarkably affect cancer survivorship, quality of life (QOL), integrative care and our ability to predict and provide needed services more accurately and with greater cost effectiveness for cancer survivors. The tools for implementing cancer control are evolving quickly.
Here are some highlights from the meeting:
- Biomarkers, which are any human characteristics that are measurable including everything from gene expression (or over-expression) to pain surveys, can potentially predict long term survival as well as the specific services that will most benefit patients.
- Symptoms that are increasingly predictable by biomarker assays include fatigue, insomnia, pain, anorexia, nausea, depression and others. This means that we will soon be able to better predict the patients who will be affected by these problems and deliver interventions much earlier and more effectively.
- Patient satisfaction is frequently not related to treatment outcome. Factors such as QOL and survivorship are important.
- Lung cancer patients suffer inordinately high, long-term QOL deficits. Many of these respond well to interventions but interventions are frequently not provided to patients with lung cancer.
- Symptom clusters ...
“What happens if my insurance won’t pay for all of this treatment?”
“How do I tell my young daughter about my cancer?”
“My spouse is really struggling, but I don’t know how to help him.”
“How will I get to radiation every day if I can’t drive?”
“My friends and family call a lot, but I don’t feel like talking to them”
“I’m scared.” “I’m angry” “I’m sad” “I’m confused”
“What’s a power of attorney…and do I need one?”
“Where can I find out about a support group? ”
“I wish I knew where to turn.”
If you are faced with a diagnosis of cancer, you may be asking similar questions and wondering where to turn for answers. A good place to start is with an oncology social worker. Oncology social workers assist with the non-medical issues that often arise when someone is diagnosed with cancer. We have master’s degrees in social work, and are specially trained to provide counseling and assistance with services that can reduce stress for you and your family through all phases of your cancer diagnosis and treatment. Social work services are available at the Swedish Cancer Institute at our First Hill, Edmonds, and Issaquah campuses, and are provided at no cost to our patients.
We can help you:
In today’s New York Times, actress and director Angelina Jolie bravely and openly discusses her experience with BRCA genetic testing for hereditary breast and ovarian cancer:
The 37 year old Ms. Jolie – who has not had cancer – underwent genetic testing because of her family history of cancer. She was found to carry a mutation in the BRCA1 gene, which puts her at significant risk of developing breast and ovarian cancers. Ms. Jolie, the mother of 3 adopted and 3 biological children, elected to undergo a risk-reducing double mastectomy, and plans to have her ovaries and fallopian tubes removed soon to lower her risk of developing ovarian cancer.
Ms. Jolie’s story opens a public conversation about the importance of genetic testing in helping to reduce a woman’s risk of developing breast and ovarian cancers. This very personal decision about mastectomy by someone widely regarded as one of the most beautiful women in the movies also helps women recognize that their body image and sexuality does not have to be defined by their breasts. Not every woman will make the decision to have major surgery, but genetic test results can also make sure that your breast cancer screening is appropriate for your level of risk; women who carry a BRCA gene mutation need ...
Misconceptions & Misunderstandings About Genetic Testing For Hereditary Cancer: My family history of cancer almost guarantees that one day I will develop cancer
Many people who have a family history of cancer often assume that they are at high risk of developing cancer and do not see the value of genetic counseling and genetic testing. The reasoning often goes like this:
“My mother, my cousin, and my grandmother all had breast cancer. I know there is a very high chance that I will develop it too. I would never have a mastectomy, so I am extra good about getting mammograms and my doctor checks my breasts every time I see her. I have a healthy diet, exercise regularly, rarely drink alcohol, and I have never put a cigarette to my lips. Since I am already doing everything I can possibly do, I don’t see how genetic counseling and genetic testing can help me.”
Of course, it is a good idea to be conscientious about your medical care, and everyone should maintain a healthy lifestyle, regardless of family history. The questions that genetic testing may answer for you are: