On Thursday, April 10, 2014, Swedish hosted a Volunteer Appreciation Celebration dinner and awards ceremony at the Seattle Tennis Club. The event was to acknowledge and give thanks to all the volunteers who generously donate their time, and energy, to making Swedish a people friendly place. The event was attended by more than 220 Swedish volunteers.
Our very own Swedish MS Center registered nurse Kim Lozano, and Certified Pet Therapy Volunteer Kathy Knox, and her Certified Therapy Dog Ocho (yellow Labrador retriever) were honored as Swedish’s “Featured Volunteer Program: The Leo Project.” Kim created The Leo Project, better known as the Leo Pet Therapy Program to enhance the services we offer our MS Center patients and their families. The name “Leo” was selected to pay tribute to Kim’s beloved dog Leo who passed away at the age of 13.
Kathy Knox and therapy dog Ocho deliver comfort and care to all people who pass through our MS Center’s walls. Ocho ...
'Multiple Sclerosis Center' posts
A guideline was recently published about the use of complementary and alternative medicine in multiple sclerosis (MS).
The guideline process involves identifying all of the scientific articles about potential therapies and evaluating them based on their scientific merits. The evaluation process follows a strict set of requirements related to the conduct of the research.
The review included a wide variety of complementary and alternative therapies that have been proposed for MS. Not surprisingly, most therapies did not have sufficient scientific data to determine whether or not they were effective. Some cannabinoid preparations (marijuana extracts) were shown to be effective, primarily for spasticity. This reflects a relatively large number of studies done with these compounds and the availability of a commercially available extract in some countries. A handful of therapies were shown to be ineffective. Most therapies had insufficient studies to determine their effectiveness.
The importance of this review is that it ...
Multiple sclerosis is BS: 'butt sitting, beaten soon, blind siding, big suckfest, beyond scary, body shaking, bourbon soothed'. “MS is BS” is the slogan for a line of t-shirts and other merchandise created by Ed Johnson, whose sole intention is to find humor and self-expression within a very bleak space.
Diagnosed in 2006 with Progressive MS, Ed went from being an active volleyball coach for over 20 years to living life in a wheelchair –in less than 12 months. While the disease took away his livelihood and ability to walk, he didn’t lose his sense of humor. It is his unabashed wit that inspired the “MS is BS” campaign.
Ed chose “MS is BS” because “I had seen it before but I just wanted to change it around. I think that it’s a catchy phrase. I have been saying ‘MS is BS’ for years and then I just kind of expanded on it.”
Most people diagnosed with MS experience feelings of anger, frustration, fear and pity. The “MS is BS” products allow anyone affected by MS a form of cathartic release. They also turn negative feelings about the disease into something positive: money to support MS research. 100% of all profits from merchandise go to the research arm of the Swedish Multiple Sclerosis Center.
April is National Stress Awareness Month so it seems appropriate to look at the impact of stress on people living with MS and to become more aware of what one can do to better manage one’s reaction to the inevitable stressors in life.
There is a growing body of research that suggests there is an association between stress and an increased risk of MS exacerbations and the development of new lesions in patients with MS. A group of Dutch researchers followed 73 patients with RRMS and found that those patients who reported a major stressful event were 2.2 times more likely to have an MS exacerbation in the following four weeks. In 2006, a group of U.S. researchers followed 36 people with MS and found that after experiencing a major life stress, those MS patients were 1.6 times more likely to develop a new lesion in the next eight weeks.2 The same group of researchers reported that the MS patients with good coping strategies could reduce this risk.
The exact mechanism by which stress increases the risk of MS exacerbations and the development of new brain lesions is not entirely clear, but what is known is that stress affects the body’s ability to regulate the inflammatory response, and in patients with MS and other autoimmune disorders, inflammation occurs when ...
The benefits of exercise and being physically fit is what many people strive for. However, a recent study added a new dimension to what exercise can do to enhance health. In other words, exercise did more than keep a body fit. It also made study participants think better. You may ask, why is this new information important?
Cognitive impairment is one of multiple scleroris (MS) ’s most disabling features and it can affect between 22% to 60% of people living with the disease. Cognitive deficits may include problems with: slower information processing speed; memory impairment; difficulty with new learning and executive functioning. Historically, medical and rehabilitation approaches to the problem have been inconsistent in improving cognition.
The new frontier of exercise for improved cognition provides hope. This study’s objective was to determine if there was an association between improvements in objective measures of physical fitness and performance on cognitive tests.
Participants were people with MS who participated in a telephone based health promotion intervention, chose to work on exercise, and who completed pre and post intervention assessments. Participants were then measured for strength, aerobic fitness, and cognition at baseline and 12 weeks later.
After controlling for variables such as age, gender, MS disease activity, MS type, etc. there was evidence suggesting that cognitive functioning changed over time based on level of fitness. Participants in the physically improved group showed improved performance on measures of executive functioning after 12 weeks of exercise. The results of this study add support to the hypothesis that change in fitness is associated with improved executive functioning in people with MS. The desired outcomes are that improved cognition correlates with better quality of life, activities of daily living, vocational endeavors, and rehabilitation measures.
Where do we go from here? Since less is known about exercise training and cognition in MS (compared to studies demonstrating aerobic and strength training significantly improving cognitive functioning in older adults and people with mild cognitive impairment), we need more studies to examine this relationship in the MS population.
Personal grants are available from a variety of MS organizations and offer assistance for everything from mobility equipment to financial support. With summertime fast approaching, grants for cooling equipment for those that are heat sensitive are also available. Check out the links below to learn more about these opportunities.
A recent study looked at ..