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'MS Center' posts

Is someone with multiple sclerosis an MSer?

A survey from the United Kingdom published in the Journal of MS and Related Disorders polled 396 people with multiple sclerosis (MS) about how they would like to be referred to in conversation. The winning term ("MSer") was supported by 43% of the respondents, while "person with MS" received 34% votes. When a United States-based blog reported on the story, 2 out of 3 respondents disagreed.

What do you think? Comment below with your preference and why.

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(Ed. note: You can comment anonymously - feel free to use your initials if you are more comfortable sharing that way.)

No-Cook Meals for Multiple Sclerosis Week 2: Gazpacho

Last week, I shared the first of a few recipes that are easy to prepare, and don’t require heating up the kitchen on a warm summer day.

Heat sensitivity can be a serious issue for people living with multiple sclerosis (MS), causing a temporary worsening, or exacerbation, of their symptoms.

This week’s no-cook meal is a tomato-based soup that is traditionally served cold. It’s chilled serving temperature makes it a popular dish for summer months and it’s veggie content makes it a nutrient-packed part of your meal.

Recipe: Gazpacho

 

Super food ingredient: Olive oil

Olive oil is ...

Robotics and the future of rehabilitation for multiple sclerosis

I am pleased to write some of my thoughts after attending the International Conference on Rehabilitation Robotics (ICORR) in June. This bi-annual meeting brings together biomedical, design, and mechanical engineers as well as providers that work in the field of rehabilitation robotics.

Robotic devices are part of the future of neuro-rehabiltation for multiple sclerosis (MS) patients.  ICORR displayed designs and prototypes of upper extremity devices and lower extremity gait orthosis devices that hold promise for MS patients.

Using these devices in clinical rehabilitation practice would improve patients’ ability to perform the frequent, repetitive movements that we know are essential for the brain to adapt to change, re-grow myelin and build connections between neurons (all parts of healthy neuroplasticity). It would also help address ....

Beat the heat! Easy, healthy, no-cook meals for multiple sclerosis

Many people with multiple sclerosis (MS) have heat and temperature sensitivity.  Hot weather, running a fever, strenuous exercise or taking a hot bath or shower can cause a temporary worsening of symptoms. The last thing you probably want to do the mercury rises this summer is turn on your stove or stand over a hot burner. Fortunately, many healthy meals can be made quickly without ever cranking up the heat in the kitchen.

Each week for the next four weeks, I will share a new no-cook recipe; each with in a healthy, low fat diet. Each recipe will highlight one ingredient as a nutritional standout with an explanation for why these foods should be included in your diet. They all make about 4 servings, but can be adjusted up or down as needed, and are ready in 20 minutes or less.

This summer, don’t let the heat be an excuse for skipping a healthy meal and going to the drive through. Instead, enjoy the air conditioning at the grocery store and pick up supplies for one of these healthy meals.

Let’s start with a simple salad containing nutritious whole grains:

Recipe: Zucchini and White Bean Salad with Whole Grains

 

Super food ingredient: Whole Grains

Whole grains are ...

The anti-inflammatory diet and multiple sclerosis

We have all seen inflammation on the surface of our bodies. Redness, heat, swelling or pain after a cut or sprain are examples of this process at work. In these cases, inflammation benefits the body by bringing more nutrients and immune activity to the injured or infected area, helping it to heal.

When inflammation occurs without purpose or is persistent, it can cause damage and illness. This type of abnormal inflammation is the root of many chronic diseases, including multiple sclerosis (MS).

Many factors contribute to chronic inflammation including stress, exposure to toxins such as cigarette smoke and dietary choices. We have control over some of the causes of inflammation. Learning what foods have an anti-inflammatory effect on the body may be beneficial in reducing long-term disease risk.

The anti-inflammatory diet is a balanced, sensible way of eating. It not only influences inflammation but also provides your body with adequate energy, vitamins, minerals, healthy fats and fiber. Here are a few recommendations for eating to reduce and prevent inflammation:

MS Research Roundup: Cannabinoids and new trials for progressive MS

A couple recent announcements may be of interest to people living with multiple sclerosis. Read the articles below and click through the links for more information about the individual studies.

Trial shows no benefit of cannabinoid in slowing multiple sclerosis progression

A UK trial of dronabinol (delta-9-THC) in 498 patients did not slow the progression of multiple sclerosis (MS) compared to placebo. Critics will point out that this is only one of many cannabinoids found in marijuana; and that the placebo arm did better than expected (thus limiting the ability to detect the effects of the drug). Nonetheless, the result is the strongest argument yet against the neuroprotective effects of THC in MS population.

New trials in progressive MS are coming

Later this year, two trials will ...

Bike the US for MS riders donate $25,000 to the Swedish Multiple Sclerosis Center

The Multiple Sclerosis Center at Swedish welcomed 30 cyclists Sunday for the finale of their coast-to-coast ride for multiple sclerosis (MS). Cyclists and a crowd of supporters and loved ones continued the celebration inside where they presented the Swedish MS Center with a $25,000 donation.

The ride was extremely significant for one of the cyclists, Diane Mattens, who is also a patient at the Swedish MS Center. Diane has been living with multiple sclerosis for nearly three decades and is the first woman with MS to complete a Bike the US for MS tour.

Diane credits Dr. James Bowen, who has been her doctor for the past 15 years, saying he "knows me all too well." In addition to raising more than $15,000 for her ride, Diane’s goal is to help change the face of MS and inspire other people living with the disease to keep moving.

“I think just knowing the fact that I can [complete the ride] is pretty motivating in itself,” Diane told KING-5 News. “You can’t waste one day because you never know what’s going to happen tomorrow.”

We are extremely grateful for ...

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