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Tips for kids with Inflammatory Bowel Disease (IBD)

Working as a CMA (certified medical assistant) in Swedish Pediatric Gastroenterology, I have the responsibility and honor of taking care of children diagnosed with a variety of gastrointestinal problems, one of the most serious being Inflammatory Bowel Disease (IBD).  IBD is an autoimmune disease that causes chronic intestinal inflammation.  Crohn’s disease and Ulcerative Colitis are the two main types of IBD, depending on the location and depth of inflammation in the gut. 

As I work with the families of children diagnosed with IBD, I am constantly amazed at what a complicated job they have, balancing life between a chronic illness and the challenges of “normal childhood”. 

As the school year gets off to a start, seeing how hectic life can become for most kids, I wanted to write down a few ways children with IBD might better empower themselves to gain control over their chronic disease:

Signs of Hearing Loss for Babies and Children

Early identification and intervention of childhood hearing loss is linked to improved outcomes in communication and learning. Most newborns receive a hearing screening before being discharged from the hospital. However, some children may experience hearing loss sometime after that initial screening. Childhood hearing loss can be caused by a number of factors including family history, health problems at birth, syndromes, persistent middle ear fluid, chronic ear infections, and exposure to loud noise or head trauma. Children with normal hearing typically demonstrate similar listening and vocalization behaviors. If your child does not display these behaviors, it may be a sign of possible hearing loss or other problems.

Does your baby…

 

Birth – 3 months

  • Wake or startle in response to a sudden noise?
  • Seem to be soothed by your voice?

4-6 months

  • Move ...

Back to School Health Tips

The last days of summer are counting down!  Here are some timely tips to help ensure the school year goes well.

To and From School Safety:

  • The school bus is a great way for children to get to school.  To ensure safety, make sure young children are supervised at bus stops.  Parents trust bus drivers to keep our kids safe, therefore it is very important for children to know and follow bus safety rules.
  • Carpooling?  Buckle up!  The American Academy of Pediatrics recommends that children ride in a booster until the seat belt fits correctly, typically when they are 4’9” (age 8-12). Use the seat belt fit test to determine if your child still needs a booster. (For safety reasons, it is against the law in Washington for a child under 13 to ride in the front seat.)  

  • Supervise young children and make sure well-fitted helmets are worn when riding a bike, scooter, or skateboard.  And, don’t forget to review pedestrian safety rules for when they are commuting.

  • In case of unforeseen circumstances, ensure your child knows your phone number and address.  An ID with this information in your child’s backpack can be helpful in case of emergency.  (A review of “stranger danger” is also a good idea.)

Nutrition:

  • Provide your children with ...

Kids with kidney disease and cold and flu season

With the summer winding down, the dreaded cold and flu season is just around the corner.  Parents with children who have a history of kidney disease need to keep in mind a few things during this season of stuffy noses and coughs.

  • Avoid NSAIDs (non-steroidal anti-inflammatory drugs) like ibuprofen, Motrin, Advil, naproxen, and Aleve.
    • NSAIDs are known to decrease blood flow to the kidneys and can cause more damage.
  • Avoid Pseudoephedrine or any medications that may contain similar ingredients.
    • Pseudoephedrine is usually an ingredient for decongestants like Sudafed and is known to increase blood pressure.
  • Say YES to the flu shot early.
    • Children with kidney disease ....

Handling stress with kids in the hospital

As the back to school sales begin, we are reminded that soon our kids will be back on the bus and returning to school routines.  As adults we may look forward to the return of a consistent routine or dread the increased activity that comes with sports, homework and friends.  For our children school can be both exciting and anxiety producing as well.

Stress can be a contributor to many illnesses and is something that we all can use help managing. (Want to find out how much you know about stress and your kids? Take this 5 question quiz here.) The questions bring up some great ways to manage stress daily for our kids; but what about the stresses of chronic illness or hospitalization?  What can you do for your child to decrease their anxiety in the hospital?

What to tell kids when a loved one is ill or in the hospital

When a loved one in the family is in the hospital or dealing with a chronic illness it can be hard to know what to say to the youngest family members.  It’s natural to want to “protect” them by not telling them or talking to them, but chances are the kids already know that something is going on.  An honest conversation can help to ease any misunderstanding they may have. 

Here are some important areas to cover when navigating a discussion about the illness or hospitalization of a loved one:

  • Honesty – Use words and descriptions that are appropriate for their age. If they are older they may ask specific details about the illness.  It’s good to call the diagnosis by name.  They may come back at a later date with other questions or even ask the same questions more than once. 
  • "Can I catch it?" – Children often have the fear that they can “catch” illnesses. They need to know, if in fact it isn’t a contagious disease, that they can not catch the illness from their loved one by being near them, hugging them and visiting with them.  This is particularly important if it is a brother or sister who is ill.
  • "Did I cause this?" – Many ....

What to expect when your child is in the Pediatric ICU (PICU)

Just the mere mention of the Pediatric ICU (PICU) can be frightening to both kids and parents.  But having a basic understanding of what people and equipment can be found in the PICU can help to lessen the anxiety.

What is the PICU?

The PICU at Swedish is a section of the hospital that provides the highest level of medical care for your child (0 to 18 years).  The PICU is different than just the regular pediatric floor because it allows for more intensive nursing care of your child and advanced continuous monitoring of their blood pressure, heart rate, breathing and more.  Patients in the PICU may also require more intensive therapies such as ventilators (a breathing machine) and certain medications that require close monitoring.

Who is hospitalized in the PICU?

Kids who are seriously ill whose medical needs cannot be met on the regular Pediatric unit will be in the PICU.  PICU patients may have breathing problems such as asthma or pneumonia, have had a lengthy surgery, have seizures or any other physical condition.  Time spent in the PICU depends on....

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