'resources' posts

In today’s New York Times, actress and director Angelina Jolie bravely and openly discusses her experience with BRCA genetic testing for hereditary breast and ovarian cancer:

The 37 year old Ms. Jolie – who has not had cancer – underwent genetic testing because of her family history of cancer. She was found to carry a mutation in the BRCA1 gene, which puts her at significant risk of developing breast and ovarian cancers. Ms. Jolie, the mother of 3 adopted and 3 biological children, elected to undergo a risk-reducing double mastectomy, and plans to have her ovaries and fallopian tubes removed soon to lower her risk of developing ovarian cancer.

Ms. Jolie’s story opens a public conversation about the importance of genetic testing in helping to reduce a woman’s risk of developing breast and ovarian cancers. This very personal decision about mastectomy by someone widely regarded as one of the most beautiful women in the movies also helps women recognize that their body image and sexuality does not have to be defined by their breasts. Not every woman will make the decision to have major surgery, but genetic test results can also make sure that your breast cancer screening is appropriate for your level of risk; women who carry a BRCA gene mutation need ...

Going through cancer treatment as a patient, family member or caregiver can take a lot of personal time. And we know that being in a hospital environment on a day-to-day basis can be exhausting. Here at the Swedish Cancer Institute (SCI), we aim to provide resources and access to services to help your mind, body and spirit heal.

One way we do this is through using innovative programs that help connect patients and family members to resources within the community. Recently, SCI has launched a new iPad Loan Program that puts interactive and educational resources right at your fingertips.

You can use the iPads while waiting in the lobby or even during treatment to:

When life-changing events happen, it can leave you and your support network at a loss. Whether it is something as joyous as the birth of a child or as devastating as a death or diagnosis, daily routines often go out the window and in the midst of adjusting to a “new normal,” we also have to figure out how to manage the tasks of everyday life. Whether you find yourself at the center of this transition or on the outside looking in, it can be difficult to know how to ask for or offer help.

Learning How to Ask

Asking for help can make you feel vulnerable. Sometimes it is hard to admit that you can’t do everything on your own. Or perhaps you feel like asking for help will burden others. From the other side, asking to help may be daunting because you don’t want your loved ones to feel like you think they can’t do it themselves. The bottom line is that, if the question isn’t asked, no one benefits. So how do you ask for or to help?

For help:

• Make...

Many people who have a family history of cancer often assume that they are at high risk of developing cancer and do not see the value of genetic counseling and genetic testing. The reasoning often goes like this:

“My mother, my cousin, and my grandmother all had breast cancer. I know there is a very high chance that I will develop it too. I would never have a mastectomy, so I am extra good about getting mammograms and my doctor checks my breasts every time I see her. I have a healthy diet, exercise regularly, rarely drink alcohol, and I have never put a cigarette to my lips. Since I am already doing everything I can possibly do, I don’t see how genetic counseling and genetic testing can help me.”

Of course, it is a good idea to be conscientious about your medical care, and everyone should maintain a healthy lifestyle, regardless of family history. The questions that genetic testing may answer for you are:

The Swedish Cancer Institute has community partnerships with several local and national organizations that strive to promote education, hope and healing to newly diagnosed patients with cancer. Specifically, two local organizations have partnered with Swedish Cancer Institute in a unique way, offering moments of inspiration and comfort in times of distress. Northwest Hope & Healing and Thrive Through Cancer are two local non-profit organizations focused on offering assistance and support to those newly diagnosed with cancer and aim to empower and connect community members with resources needed to flourish....

“It takes a village to raise a child” but as a new or expectant parent or “village member,” preparing for a new baby can be daunting. From siblings, to grandparents, to aunts, uncles, cousins, and family friends, all of these people feel the ripple effect of having a baby. However, unlike parents, this larger social network may not have had the chance, motivation, or tailored resources to prepare for this change. So how can new or expectant parents help prepare non-parents for the birth of a child? Though the answer depends on the person’s age and their relationship to baby, here are some general tips to prepare your “village.”

• Involve friends and family in preparing for the baby: Depending on your comfort level and your audience, involve your loved ones in preparations from going to doctor’s appointments, to packing your bag for the hospital, to deciding on a layout or paint color for the nursery. Inviting people to help you prepare...

What do I tell my boss? Will I have to quit? How will I afford my future?

A multiple sclerosis diagnosis can come with a lot of uncertainty and questions about the future. But it does not have to be career-ending. Learning about your employment options and planning ahead can help you make informed decisions about your career.

Beginning May 8, 2013, the Multiple Sclerosis Center at Swedish Neuroscience Institute will offer free workshops to help people navigate their employment options. Employment Matters is a monthly series  designed to prepare people with the knowledge to confidently approach challenges, build a career plan and strengthen their employment options.

Shaheen Virani, CRC, leads the Employment Matters workshops. Shaheen is a rehabilitation counselor who specializes in helping people with MS make plans and decisions to support their individual employment needs--whether it is to continue working, make a career change or apply for disability.

Here are a few Employment Matters topics coming up this spring (or click here for the full 2013 schedule):